Horrendous situation

Hi, I'll keep this as short as possible as I could go on and on.

My son's GP referred him to camhs when he was 6 years old as we and school believed him to be showing signs of autism/aspergers.

No test was done but he was kept on their books for 10 years.

In that time he was admitted to a psychiatric hospital twice and had attempted suicide on more than one occasion.

He was unable to sit in a classroom for longer than 5 minutes and was given an educational statement.

He had to move secondary school as he was learning nothing and the school couldn't cope with his emotional outbursts.

Last year he was admitted to a psychiatric hospital for a second time and was finally tested for autism.

The result came back that he wasn't autistic and the doctors accused my wife a I of looking for a diagnosis that isn't there and that we were harming him.

We were accused of child neglect and were taken to a child protection conference where we were found guilty.

We knew that if our son came home that he would no longer get any help from camhs and his future would be unbearable for him.

His weekly suicide threats and physical abuse towards his family would only get worse.

He was put in Foster Care and we were made to feel like the worst parents on the planet.

Social services of course were working in partnership with camhs and we had to go through the humiliation of being taught how to be a parent, even though we have a daughter at university studying psychology.

After a few weeks of being in care the alarm bells were ringing in social services office as the foster carer had told them that they couldn't cope with our son and that he had big problems.

To cut a long story short our son is now living with his secong foster carer and he has been forwarded to a new camhs team who have told them that they can't understand how after 10 years that his mental health has been missed and that they are 100% convinced that he is autistic.

Social services are now being super friendly towards us but that doesn't take away the horror that our son has gone through and the nightmare that we are still living.

Parents
  • If I might ask some questions, Makkapakka, did you only look for immediate triggers for item 5 - emotional outbursts that came out of nowhere?

    There seems to be an established assumption that there is a recognisable trigger for meltdowns/emotional outbursts near the event, which is why parents are encouraged to keep diaries.

    However there is another way of looking at this - that the outbursts are a response to build up of complex stresses that may be set off by something very minor, in effect a last straw. Hence the trigger as such is not really relevant

    Hence were you aware of him having long established, deep-seated worries, unresolved issues, environmental stresses that kept him near explosion point most of the time?

    Some of that environmental stress can be caused by bullying in schools, which may be subtler than conventional bullying, ranging from ridicule by classmates to people openly taking advantage of his difficulty.

    Constant knocks, put-downs, humiliations are going to have damaging impact long term. Difficult to address in retrospect, but is there evidence, looking back that he was progressively worn down by 'insults' to his mental wellbeing, also monumental loss of self confidence and self esteem?

    The point of learning is quickly lost since it doesn't fix the immediate distress.

    There is evidence of people on the spectrum resorting to alcohol, initially in the hope of a social fix that never comes about, so only entrenches isolation and solitude. There is a book "Asperger Syndrome and Alcohol - Drinking to Cope? by Matthew Tinsley and Sarah Hendrickx (Jessica Kingsley Publishers 2008 ISBN 978 1 84310 609 8 - this number helps a librarian or bookshop find it).

    Becoming manipulative is a defence mechanism against perceived sources of hurts.

    Not a great source of comfort well down the line, but at 22 he is of an age where a road back is possible

Reply
  • If I might ask some questions, Makkapakka, did you only look for immediate triggers for item 5 - emotional outbursts that came out of nowhere?

    There seems to be an established assumption that there is a recognisable trigger for meltdowns/emotional outbursts near the event, which is why parents are encouraged to keep diaries.

    However there is another way of looking at this - that the outbursts are a response to build up of complex stresses that may be set off by something very minor, in effect a last straw. Hence the trigger as such is not really relevant

    Hence were you aware of him having long established, deep-seated worries, unresolved issues, environmental stresses that kept him near explosion point most of the time?

    Some of that environmental stress can be caused by bullying in schools, which may be subtler than conventional bullying, ranging from ridicule by classmates to people openly taking advantage of his difficulty.

    Constant knocks, put-downs, humiliations are going to have damaging impact long term. Difficult to address in retrospect, but is there evidence, looking back that he was progressively worn down by 'insults' to his mental wellbeing, also monumental loss of self confidence and self esteem?

    The point of learning is quickly lost since it doesn't fix the immediate distress.

    There is evidence of people on the spectrum resorting to alcohol, initially in the hope of a social fix that never comes about, so only entrenches isolation and solitude. There is a book "Asperger Syndrome and Alcohol - Drinking to Cope? by Matthew Tinsley and Sarah Hendrickx (Jessica Kingsley Publishers 2008 ISBN 978 1 84310 609 8 - this number helps a librarian or bookshop find it).

    Becoming manipulative is a defence mechanism against perceived sources of hurts.

    Not a great source of comfort well down the line, but at 22 he is of an age where a road back is possible

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