Struggles in the playground? Any advice please?

Hello, I'm new to this site.  My son is six years old and in year 2 at school.  I've always known there's something different about my son, but couldn't put my finger on it until earlier this year, after watching Embarrassing Bodies on tv.  My husband and I did a quick questionaire online about Dyspraxia and it came out that my son probably has got that, but seemed to point also to Aspergers.  I did a lot of reading up online and I am positive he has Aspergers.  He is progessing well with his reading and maths (much higher than average for maths), but unable to write stories (cannot think of ideas) or draw pictures (his pictures are missing detail and are equivalent of around a 3 year old).  He seems to struggle with the imagination and social side of things (including routine changes too).

We are on the list for a Community Paediatrician appointment but I have been told that it's a very long list and could take a long time for an official diagnosis, so I'm doing all I can to help my son now.  

He is happy in the classroom but he is struggling during playtimes (the unstructured parts of the day).  He doesn't like sport so can't join in football, and the other boys play make believe games that he struggles to join in with, and they also won't let him join in.  He comes home most days saying he had been crying during lunchtimes because he wasn't allowed to join in.  Party invites have stopped arriving and I'm becoming increasingly concerned about him as I don't want him to become depressed and not want to go to school.  When we saw the Occupational Therapist (1st appointment for Dyspraxia possibility), she asked him if he had many friends and he said no not really, no one wants to play with me.  I felt completely heartbroken for him.

If anyone knows any advice or tips I can help him with, or any kids clubs in the South West (Bristol and Weston-Super-Mare area), I would be really grateful.

Parents
  • Hi MissKrissy

    I have heard so many similar stories - where children are waiting too long for a diagnosis.  Perhaps you could wave the NICE guidelines for recognition, referral and diagnosis of autism in children and young people in front of their noses?  I would also consider writing to the Chief Exec of your local Primary Care Trust pointing out how long the wait for a diagnosis is, stating that this is unacceptable and asking how this fits with the recommendations in the NICE guidelines.  Or make a formal complaint....that usually focuses peoples minds.

    Or you could obtain a private diagnosis (if you can afford to pay for it) - there will be info on the NAS site about how to do that.

    Your child doesnt have to have a diagnosis in order for the school to put plans in place to consider whether he has special educational needs (SEN).  There will be info on the NAS site about how to ask your school to look at what measures need to be in place to support your son and this would include any support he needs in unstructured times at school.  Schools have to look at what the child's difficulties are when a child might have SEN.  Your local Parent Partnership Service (search on the NAS site) should also be able to support you re how to get through the maze of bureaucracy that is associated with getting needs met properly at school.

    I've just written a 2 blogposts on this exact issue, which you may find helpful:

    http://notnigellanotjamie.blogspot.com/2011/10/individual-education-plan-iep-blueprint.html

    about the assessment process and

    http://notnigellanotjamie.blogspot.com/2011/11/iep-time-to-get-your-underpants-on-over.html

    about Individual Education Plans (IEPs)

    Hope that helps

    Zoe

Reply
  • Hi MissKrissy

    I have heard so many similar stories - where children are waiting too long for a diagnosis.  Perhaps you could wave the NICE guidelines for recognition, referral and diagnosis of autism in children and young people in front of their noses?  I would also consider writing to the Chief Exec of your local Primary Care Trust pointing out how long the wait for a diagnosis is, stating that this is unacceptable and asking how this fits with the recommendations in the NICE guidelines.  Or make a formal complaint....that usually focuses peoples minds.

    Or you could obtain a private diagnosis (if you can afford to pay for it) - there will be info on the NAS site about how to do that.

    Your child doesnt have to have a diagnosis in order for the school to put plans in place to consider whether he has special educational needs (SEN).  There will be info on the NAS site about how to ask your school to look at what measures need to be in place to support your son and this would include any support he needs in unstructured times at school.  Schools have to look at what the child's difficulties are when a child might have SEN.  Your local Parent Partnership Service (search on the NAS site) should also be able to support you re how to get through the maze of bureaucracy that is associated with getting needs met properly at school.

    I've just written a 2 blogposts on this exact issue, which you may find helpful:

    http://notnigellanotjamie.blogspot.com/2011/10/individual-education-plan-iep-blueprint.html

    about the assessment process and

    http://notnigellanotjamie.blogspot.com/2011/11/iep-time-to-get-your-underpants-on-over.html

    about Individual Education Plans (IEPs)

    Hope that helps

    Zoe

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