saying No

My daughter is 14 years old and has just been diagnosed with ASD and ADHD.  The main thing I am struggling with at the moment is she does not seem to accept the work no.  If she wants to do something/ wants something she has to have it and does not seem to understand why she can't.  Does anyone have similar problems.

Also do local authoritys have specific help they can offer or courses which should be made available to children/parents living with autism as she seems to have the diagnosis but we don't know where to go from here.  She is currently being assessed for an EHC plan

Thank you

Parents
  • Marjorie, I have had heard that kind of parenting advice before.  I'm guessing that you have not raised any autistic children? Anyway, I did make him write a schedule of things he will do to earn the sports subsciption.  Nevertheless, the fact remains that "No" is very difficult for him as he does not understand things the way other kids do. For me, following the usual parenting advice for non autistic children is therefore ineffective.

    Dolly - He used to cope well at school but now he has a high level of anxiety around school and has taken a lot of time off as a result.  He has some long standing friends but does not go out of the house much although he communicates with his friends on the XBox and Instagram.  

    He struggles to care for himself but I suspect that if I was not around and he had to look after himself then he would manage.  He can make a cup of tea but he won't attempt to make a sandwich, for example.  His personal hygeine is bad in the holidays but fine when he has to go to school.  His room is a tip with rubbish and food everywhere.  I go into it about once a week to sort it out otherwise it would be a serious health and safety hazard!!!   

    I've just had to cancel an appointment for his ADOS assessment as I will be away.  I'm so frustrated!  Hopefully, we will get another appointment soon. 

    Keep strong! x

     

Reply
  • Marjorie, I have had heard that kind of parenting advice before.  I'm guessing that you have not raised any autistic children? Anyway, I did make him write a schedule of things he will do to earn the sports subsciption.  Nevertheless, the fact remains that "No" is very difficult for him as he does not understand things the way other kids do. For me, following the usual parenting advice for non autistic children is therefore ineffective.

    Dolly - He used to cope well at school but now he has a high level of anxiety around school and has taken a lot of time off as a result.  He has some long standing friends but does not go out of the house much although he communicates with his friends on the XBox and Instagram.  

    He struggles to care for himself but I suspect that if I was not around and he had to look after himself then he would manage.  He can make a cup of tea but he won't attempt to make a sandwich, for example.  His personal hygeine is bad in the holidays but fine when he has to go to school.  His room is a tip with rubbish and food everywhere.  I go into it about once a week to sort it out otherwise it would be a serious health and safety hazard!!!   

    I've just had to cancel an appointment for his ADOS assessment as I will be away.  I'm so frustrated!  Hopefully, we will get another appointment soon. 

    Keep strong! x

     

Children
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