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My 1st post

GlamMam

Sorry guys, it's likely to be a long one.

My 18 yr old son was diagnosed with Aspergers when he was 7. He has managed through school fairly well, got amazing grades at GCSE with a part time LSA allocated to him for the last 5 years of school (including 6th form). His A levels were a bit of a mish mash as the school couldnt accommodate him for the whole timetable so he had to do a course at night school too. He did fairly well at his A levels, enough to get into University to study Biology at degree level.

Before he was due to go to Uni I made all sorts of enquiries about getting him some independant living courses as he wanted to live in halls. Of course, as has happened all through his aspie life, we hit brick walls everywhere we turned. Once again, the social services refused to help us and the Uni can only provide funding for so much. He has a mentor and a study skills tutor.

I try and go to see a few times a week to make sure everything is okay (and of course to do the obligatory washing) but, things dont seem to be going to plan.

I had a phone call last week from the disabilty student support section to say that they are concerned for his well-being (although she didnt elaborate why) and i have just got back from seeing him, i have spent the last 2 hours crying my eyes out, because it seems he isnt coping very well. He has this tendency to say everything is 'fine' when it obviously isnt.

He needs more help than is currently being provided and i dont know where else to turn. If things carry on the way they are now, I cant even see him lasting the first year at Uni.

Any suggestions? Please!

 

Parents

  • Hi GlamMam,

    Your story sounds a lot like my own. My son (17 next month) got good marks at school too, but cant cope with the world at large and gets very confused at college.  I think people in general have difficulty separating educational ability with the ability to cope in the world. They think because he got good marks he is clever and should be able to manage everything. Its very frustrating. Does the person that contacted you with concerns over your son not have a 'duty of care' to help him or does 'duty of care' stop when they are no longer children?

    Hope everything is a bit better by now

    Take care

    Hi longman,

    I think its just gone quiet as there is a lot of information to go through and check out with the uni. I always read your posts as they are a big help to me. I will be using the info myself when im looking at my son getting to uni. He has applied for his HNC course next year so starting the whole SAAS disability student funding soon myself. Thanks loads.

    Sam

    x

Reply

  • Hi GlamMam,

    Your story sounds a lot like my own. My son (17 next month) got good marks at school too, but cant cope with the world at large and gets very confused at college.  I think people in general have difficulty separating educational ability with the ability to cope in the world. They think because he got good marks he is clever and should be able to manage everything. Its very frustrating. Does the person that contacted you with concerns over your son not have a 'duty of care' to help him or does 'duty of care' stop when they are no longer children?

    Hope everything is a bit better by now

    Take care

    Hi longman,

    I think its just gone quiet as there is a lot of information to go through and check out with the uni. I always read your posts as they are a big help to me. I will be using the info myself when im looking at my son getting to uni. He has applied for his HNC course next year so starting the whole SAAS disability student funding soon myself. Thanks loads.

    Sam

    x

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