tortured by her autism

Hi

I feel helpless to help my autistic 13 year old daughter. She is aware of her condition. She has never made friends but feels lonely. Meltdowns are now daily. She is screaming, crying, shouting and breaking things in our home. She seems tortured by her condition that makes her feel isolated. My son is severly autistic and is so happy and content. He is not aware of his condition, he does not have friends but doesnt feel lonely as he doesnt miss or need friends. How can help her? She wont join activities for special needs. She dances 3 days a week but doesnt speak to anyone there and kids tend to pick up on it and don't try to speak to her. Her moods swing from being extremely hyper and happy to saying she wants to die. She also seems to have issues with food and wieght now too. She is constantly anxious about gaining wieght and has lost loads.

Im greatful to anyone who takes the time to respond.

Parents
  • Hi  - I don't have any real answers - wish I did  but I will listen always.  Do you have the support of your GP? Depends which county you're in as to any autism family support.  There is none as far as I'm aware in Bucks where we are.  But there is in Oxfordshire.    What about the SEN school - does it help?  I would definitely log as much as you can.   I apologise if all this is standard and been tried.   The NAS has got a standard template for a letter to ask for support but it means writing to social services at your LA (County Council)?    I've been advised by IPSEA/NAS Education Rights Service + GPs and Consultant to keep fighting.  Even to write to our MP.    ( I've just read the National Autistic Society Make School Make Sense report which just highlights some of the difficulties with schools.)


     

Reply
  • Hi  - I don't have any real answers - wish I did  but I will listen always.  Do you have the support of your GP? Depends which county you're in as to any autism family support.  There is none as far as I'm aware in Bucks where we are.  But there is in Oxfordshire.    What about the SEN school - does it help?  I would definitely log as much as you can.   I apologise if all this is standard and been tried.   The NAS has got a standard template for a letter to ask for support but it means writing to social services at your LA (County Council)?    I've been advised by IPSEA/NAS Education Rights Service + GPs and Consultant to keep fighting.  Even to write to our MP.    ( I've just read the National Autistic Society Make School Make Sense report which just highlights some of the difficulties with schools.)


     

Children
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