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Looking for people experiencing similar problems

Robyn21

I have a 14 year old daughter recently diagnosed with autism and has been in burnout since December last year. She’s not currently in school, waiting on Ehcp and section 19. 
I am incredibly lonely, I have no one that understands that I can talk to. At the moment no one knows what is going on other than our household. No support. My husband is finding it challenging to know how to deal with our daughter and their relationship is pretty poor he doesn’t have any involvement with her and if he does he reacts in a way that blows things up.

I’m really struggling to know what’s best and carrying the weight of her present and future.

My biggest struggle with her right now is getting to sleep at a sensible time and getting her up before 3pm!

Shes into gaming and her only communication and social interaction is through this. She’s staying up and online with friends in America meaning they’re on a different time and she’s angry with me as she feels she’s finally making friends and having fun but I’m taking the computer away at 11pm. I wake her before I leave for work at 8.15am with breakfast, she sets alarms which don’t wake her and if no one is at home to try to wake her she’ll still be in bed when I get home which can be between 3 and 5pm.

On the weekends I spend my entire day just trying to get her up.

I’m exhausted, I feel lonely, I miss her, I miss all the things we aren’t doing together. 

Parents

  • This is so difficult when it's combined with teenage rebellion and angst. I gamed for ten years as an adult as an antidote to stress, but I was lucky - I was part of a European gaming clan and had to work to pay the bills, so I couldn't afford to game all night even though it meant I missed out on a lot. That's not something a teenager is built to cope with.

    Hugs, for your problems with her and your husband, and for how alone it makes you feel. 

  • in reply to Alexa

    It’s so difficult and to understand whether it’s them struggling or just normal teenage behaviour, I question whether I am to soft with some things but also on the edge knowing how hard things are for her and not wanting to make things harder. 
    if only she could mix with more gamers from the uk but she says these guys are the first people to want to be friends and that she’s connected with. It’s not ideal but I wouldn’t mind if she gamed all day and slept at a sensible hour at night, I’ve explained it’s not the gaming I’m against. 
    Thank you, I really appreciate your support. 

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  • in reply to Alexa

    It’s so difficult and to understand whether it’s them struggling or just normal teenage behaviour, I question whether I am to soft with some things but also on the edge knowing how hard things are for her and not wanting to make things harder. 
    if only she could mix with more gamers from the uk but she says these guys are the first people to want to be friends and that she’s connected with. It’s not ideal but I wouldn’t mind if she gamed all day and slept at a sensible hour at night, I’ve explained it’s not the gaming I’m against. 
    Thank you, I really appreciate your support. 

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