I have a 14 year old daughter recently diagnosed with autism and has been in burnout since December last year. She’s not currently in school, waiting on Ehcp and section 19.
I am incredibly lonely, I have no one that understands that I can talk to. At the moment no one knows what is going on other than our household. No support. My husband is finding it challenging to know how to deal with our daughter and their relationship is pretty poor he doesn’t have any involvement with her and if he does he reacts in a way that blows things up.
I’m really struggling to know what’s best and carrying the weight of her present and future.
My biggest struggle with her right now is getting to sleep at a sensible time and getting her up before 3pm!
Shes into gaming and her only communication and social interaction is through this. She’s staying up and online with friends in America meaning they’re on a different time and she’s angry with me as she feels she’s finally making friends and having fun but I’m taking the computer away at 11pm. I wake her before I leave for work at 8.15am with breakfast, she sets alarms which don’t wake her and if no one is at home to try to wake her she’ll still be in bed when I get home which can be between 3 and 5pm.
On the weekends I spend my entire day just trying to get her up.
I’m exhausted, I feel lonely, I miss her, I miss all the things we aren’t doing together.
