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Private Diagnosis or via school

sitter537

My 5 yr old son is being monitored for learning difficulties over a 6month period, starting from April, paused during school holidays, continuing now. I'm fairly sure its ADHD and autism as getting his attention for anything he is not interested in is a real challenge, and the melt downs over routine change is a mighty mighty challenging and talking to him is like talking to a brick wall at times & he obsesses hard. I'm also fairly sure I'm autistic but never got officially diagnosed, online tests tend to put me on the autism spectrum, but I find those things hard to answer as I've learned to navigate social expectancies & behaviour, but I'm finding myself in a hard place right now, reverting back to self medication & marriage on the line. I'm now pondering whether to go private for myself, my son or just wait for the school, though I've no idea what happens based on their report but I've hope for referral for him and eventually myself as I heard some years back that if autism is in a child the parents can also get tested. I've looked at the fees for private assessment and damn is it expensive.

  • I hope this is a helpful perspective, and also hope things get better for you and your family.

    It's worth thinking about what the diagnosis is for as it's not an end in itself.

    I have a 5 year old autistic son and the diagnosis has been a gateway to the support we need from the council, school, DWP, healthcare, out of school activities etc. I would say push for it.

    For yourself, what would you like to change and how do you see a diagnosis helping with that?

    Just a perspective, as I say sending you all the best.

  • Hi Sitter, thanks for sharing this here. 

    Our website has a diagnosis hub, this includes information, practical and multimedia resources to support autistic people and their families before during and after diagnosis.  

    You may want to visit the other resources on our website, we have advice and guidance on a wide range of information about autism, socialising and relationships, communication and education: https://www.autism.org.uk/advice-and-guidance 

    You can try searching on our Autism Services Directory for diagnostic services in your local area.  The Directory also includes listings for support and social groups for autistic people, their families and friends. 

    I really hope this is of some use to you.

    All the best