I don't know my baby anymore

We've just been told that whilst we don't have a diagnosis yet, we are in that "ball park" by the paediatrican at RSCH. 

And now I don't feel like I know my son anymore.

He's 2.5 and this week I've just felt like I can't take him out to any of the places we used to go. I don't feel like I can play with him, without bursting int to tears and as such he's happily playing on his own.

Does this pass?

Can I ask other parents of ASD toddlers if and how they integrate? We live in a small town in rural surrey so there are no specialist facilities close by. Do I just keep him at home?

I'm so sad. Sorry

Parents
  • hi my son is the same age as yours im wiaiting for appointment that has just come through today i understand about the whole going out situation i got to the point where i didint want to go out anymore but i found one way of keeping him calm was by holding his thomas train a little one thatw as just right for him although its only worked a few times but when i go food shopping i found that my son liked to help me so i would stand him up in the trolley and give him the itmes to put in the trolley for me and at the end he would like to put them on the till for me although i just have to watch my eggs as he does like to put things down hard :) some trips can still be very hard but ive found that its all about visual photos for him that also helps him undertsand about where we are going who we are seeing and also a time to go home photo which is one of our flats so he has to choose also about giving him choices my son is non verbal at the moment so he points to things he wants wich can be frustrating espically if we dont have something in paticular he wants your not alone ive found since being a member on this site ive had so much help and advice ask your gp if there is an advise centre near you where you can go to get more help and advise ive just found one altough i felt silly going in there as not having a diagnosis yet they have been a major help and really surpported me im also seeing a counciller to help me deal with my own emotions which the child develoment team set up as we need to to talk about our own emotions and feelings too please dont feel alone there are help and surport agencys out there to help you xxxx

Reply
  • hi my son is the same age as yours im wiaiting for appointment that has just come through today i understand about the whole going out situation i got to the point where i didint want to go out anymore but i found one way of keeping him calm was by holding his thomas train a little one thatw as just right for him although its only worked a few times but when i go food shopping i found that my son liked to help me so i would stand him up in the trolley and give him the itmes to put in the trolley for me and at the end he would like to put them on the till for me although i just have to watch my eggs as he does like to put things down hard :) some trips can still be very hard but ive found that its all about visual photos for him that also helps him undertsand about where we are going who we are seeing and also a time to go home photo which is one of our flats so he has to choose also about giving him choices my son is non verbal at the moment so he points to things he wants wich can be frustrating espically if we dont have something in paticular he wants your not alone ive found since being a member on this site ive had so much help and advice ask your gp if there is an advise centre near you where you can go to get more help and advise ive just found one altough i felt silly going in there as not having a diagnosis yet they have been a major help and really surpported me im also seeing a counciller to help me deal with my own emotions which the child develoment team set up as we need to to talk about our own emotions and feelings too please dont feel alone there are help and surport agencys out there to help you xxxx

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