I don't know my baby anymore

We've just been told that whilst we don't have a diagnosis yet, we are in that "ball park" by the paediatrican at RSCH. 

And now I don't feel like I know my son anymore.

He's 2.5 and this week I've just felt like I can't take him out to any of the places we used to go. I don't feel like I can play with him, without bursting int to tears and as such he's happily playing on his own.

Does this pass?

Can I ask other parents of ASD toddlers if and how they integrate? We live in a small town in rural surrey so there are no specialist facilities close by. Do I just keep him at home?

I'm so sad. Sorry

Parents
  • My 4 year old has just been diagnosed with ASD and I have known something wasnt right since he was about 2 years old and I literally locked myself away i got invited to friends houses and out for coffee but felt my son was just too uncontrollable he would literally run everywhere at full pelt which was great for dog walking but not so much in the town centres, he hates hates hates shops so i couldnt go shopping (which my husband taught him i am sure) and I felt like a bad mum.  I think in the end i just had enough and just gritted my teeth and started taking him to more things like the ball pit where he can run around and swimming and each day gets that little bit better.  He is a lovely boy and in the house he will happily play by himself too i try to get him to sit with a book or jigsaw like my first two and he just wasnt interested but now with more routine we can manage a book or two or three at night which is great.  Some days are great and somne days i feel like pulling my hair out im sure your friends would understand, i find if you explain to people they are more likely to understand your predicament we are all human after all :)  I am sure when you get an official diagnosis you will get more information, like my peadiatrician has just mentioned to me about early bird learning classes that are run (check it out on this website) which teaches you ways to handle situations etc i am currently waiting to go on this course but that may be useful to you too :)

Reply
  • My 4 year old has just been diagnosed with ASD and I have known something wasnt right since he was about 2 years old and I literally locked myself away i got invited to friends houses and out for coffee but felt my son was just too uncontrollable he would literally run everywhere at full pelt which was great for dog walking but not so much in the town centres, he hates hates hates shops so i couldnt go shopping (which my husband taught him i am sure) and I felt like a bad mum.  I think in the end i just had enough and just gritted my teeth and started taking him to more things like the ball pit where he can run around and swimming and each day gets that little bit better.  He is a lovely boy and in the house he will happily play by himself too i try to get him to sit with a book or jigsaw like my first two and he just wasnt interested but now with more routine we can manage a book or two or three at night which is great.  Some days are great and somne days i feel like pulling my hair out im sure your friends would understand, i find if you explain to people they are more likely to understand your predicament we are all human after all :)  I am sure when you get an official diagnosis you will get more information, like my peadiatrician has just mentioned to me about early bird learning classes that are run (check it out on this website) which teaches you ways to handle situations etc i am currently waiting to go on this course but that may be useful to you too :)

Children
No Data