Self-injurious behaviour in adults — what helped?

My son is 25, autistic with a mild to moderate learning disability, verbal but with significant communication difficulties, and in good health. He is a lovely young man who leads a largely happy life but has severe meltdowns during which he bangs his head against walls or his knee, and bites his hand. These have gone on for years. He cannot reliably tell us what triggers them, though sometimes it's obvious and sometimes it seems to come from nowhere.

We have been through CAMHS among other avenues without success. He has been on sertraline 150mg since 2014.

Has anyone's adult child significantly reduced or stopped this kind of self-injurious behaviour? If so, what worked — was it a particular type of therapist, a specific approach, a medication change, or something else entirely?

Any experience gratefully received. We are hoping to hear from people who have actually been through something similar and found something that helped.

Parents
  • Thank you, have taken a look at the recommended page. He's 6'1 and 82 kilos, so we're past the stage of giving him a pillow to bang his head against, sadly. You name it, we've tried it. It mentions contacting professionals. As far as I can see, there are no professionals dealing with this, publicly or privately. Plenty of people are offering to diagnose you for several thousand pounds. But at the end of it, there is nothing. It's such a simple thing. He is a happy and relaxed person when he's not having a meltdown, and he could enjoy a semi-independent life if not for this. And the head banging is definitely not good for his future health, I should imagine. 

Reply
  • Thank you, have taken a look at the recommended page. He's 6'1 and 82 kilos, so we're past the stage of giving him a pillow to bang his head against, sadly. You name it, we've tried it. It mentions contacting professionals. As far as I can see, there are no professionals dealing with this, publicly or privately. Plenty of people are offering to diagnose you for several thousand pounds. But at the end of it, there is nothing. It's such a simple thing. He is a happy and relaxed person when he's not having a meltdown, and he could enjoy a semi-independent life if not for this. And the head banging is definitely not good for his future health, I should imagine. 

Children
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