Self-injurious behaviour in adults — what helped?

My son is 25, autistic with a mild to moderate learning disability, verbal but with significant communication difficulties, and in good health. He is a lovely young man who leads a largely happy life but has severe meltdowns during which he bangs his head against walls or his knee, and bites his hand. These have gone on for years. He cannot reliably tell us what triggers them, though sometimes it's obvious and sometimes it seems to come from nowhere.

We have been through CAMHS among other avenues without success. He has been on sertraline 150mg since 2014.

Has anyone's adult child significantly reduced or stopped this kind of self-injurious behaviour? If so, what worked — was it a particular type of therapist, a specific approach, a medication change, or something else entirely?

Any experience gratefully received. We are hoping to hear from people who have actually been through something similar and found something that helped.

  • I'm not sure if my experience helps anyhow,  I don't have any learning disability,  but self injurious behaviour and meltdowns were my problems for years. At some point they reappeared. Last time it was in December last year I had them again. Too much stress and overwhelm caused me banging my head and strong desire to cut myself with knife, although I didn't really want to hurt myself or cause any problems. I was in touch with my psychiatrist who gave me seronil (fluoxetin 50mg x2 per day) now I take x1 per day. It helps me, I have less stress, but in the beginning I had very unpleasant side effects that actually increased my frustration. 

    Another thing that I found helpful and relaxing was watching production processes. Whatever- wigs, minced meat, soap, biscuits, chocolate, glass, porcelain etc. Watching it again and again soothes me. Another thing that I find sometimes soothing is high pressure shower. I take these meds since January this year and I have to take them till January next year, at least. I'm sorry if it's not helpful. I don't have access to any specialised therapies in my area.

  • I just wanted to bump this post in the hope you can get some responses.

    The only thing I could suggest is if you've looked into chewlry? You'd need something sturdy, but it's good for pressure on the teeth.