Self-injurious behaviour in adults — what helped?

My son is 25, autistic with a mild to moderate learning disability, verbal but with significant communication difficulties, and in good health. He is a lovely young man who leads a largely happy life but has severe meltdowns during which he bangs his head against walls or his knee, and bites his hand. These have gone on for years. He cannot reliably tell us what triggers them, though sometimes it's obvious and sometimes it seems to come from nowhere.

We have been through CAMHS among other avenues without success. He has been on sertraline 150mg since 2014.

Has anyone's adult child significantly reduced or stopped this kind of self-injurious behaviour? If so, what worked — was it a particular type of therapist, a specific approach, a medication change, or something else entirely?

Any experience gratefully received. We are hoping to hear from people who have actually been through something similar and found something that helped.

  • But I just replied to say that was not useful.

  • Thank you, have taken a look at the recommended page. He's 6'1 and 82 kilos, so we're past the stage of giving him a pillow to bang his head against, sadly. You name it, we've tried it. It mentions contacting professionals. As far as I can see, there are no professionals dealing with this, publicly or privately. Plenty of people are offering to diagnose you for several thousand pounds. But at the end of it, there is nothing. It's such a simple thing. He is a happy and relaxed person when he's not having a meltdown, and he could enjoy a semi-independent life if not for this. And the head banging is definitely not good for his future health, I should imagine. 

  • Thank you for getting back to me Cinnabar. We did try chewies back in the day, and although he enjoyed using them, they did nothing to stop the 0 to 100 meltdowns. If he could only catch himself before things escalate. 

  • Hi Judy1945,

    Thank you for sharing.  I am sure the online community will have some peer advice for you.

    In the meantime you may find this: https://www.autism.org.uk/advice-and-guidance/behaviour/self-injurious-behaviour useeful.

    Take Care

    Suzanne Mod

  • I'm not sure if my experience helps anyhow,  I don't have any learning disability,  but self injurious behaviour and meltdowns were my problems for years. At some point they reappeared. Last time it was in December last year I had them again. Too much stress and overwhelm caused me banging my head and strong desire to cut myself with knife, although I didn't really want to hurt myself or cause any problems. I was in touch with my psychiatrist who gave me seronil (fluoxetin 50mg x2 per day) now I take x1 per day. It helps me, I have less stress, but in the beginning I had very unpleasant side effects that actually increased my frustration. 

    Another thing that I found helpful and relaxing was watching production processes. Whatever- wigs, minced meat, soap, biscuits, chocolate, glass, porcelain etc. Watching it again and again soothes me. Another thing that I find sometimes soothing is high pressure shower. I take these meds since January this year and I have to take them till January next year, at least. I'm sorry if it's not helpful. I don't have access to any specialised therapies in my area.

  • I just wanted to bump this post in the hope you can get some responses.

    The only thing I could suggest is if you've looked into chewlry? You'd need something sturdy, but it's good for pressure on the teeth.