Any parents who are Autistic or think they probably are

I am a parent of a boy who’s diagnosed with Autusm.  I myself am awaiting an Autism assessment and my husband believes he is although he doesn’t want an assessment.  Any parents who are either diagnosed or self identify as Autistic how do you find parenting children with Autism any advice? 

Parents
  • I and my adult daughter are both diagnosed autistic (ASD). The major problems we experienced were caused by our child's anxiety and lack of interoception. It took us many referrals and tests for various possible physical problems before we realised that our daughter's repeated symptoms of nausea and vomiting were the product of chronic anxiety, particularly social anxiety relating to school. Lack of interoception meant that she really could not tell us 'where it hurts', or even how bad it hurts. On one occasion this meant that a grumbling appendix went unrecognised until it perforated and we had an emergency on our hands - luckily the appendectomy was successful, leaving no long-term problems.

Reply
  • I and my adult daughter are both diagnosed autistic (ASD). The major problems we experienced were caused by our child's anxiety and lack of interoception. It took us many referrals and tests for various possible physical problems before we realised that our daughter's repeated symptoms of nausea and vomiting were the product of chronic anxiety, particularly social anxiety relating to school. Lack of interoception meant that she really could not tell us 'where it hurts', or even how bad it hurts. On one occasion this meant that a grumbling appendix went unrecognised until it perforated and we had an emergency on our hands - luckily the appendectomy was successful, leaving no long-term problems.

Children