Need advice on violence and talk of suicide

My son is 7 years old. He's recieved a diagnosis of high dependency autism. He will be starting a resource based school in September because his mainstream school couldn't cope.

What worries me is the fact he self harms, alot. He talks about killing himself alot. He lashes out and is violent alot. It's heartbreaking. As a mother watching my child punch himself in the face or scratch himself deep enough to leave marks down his face or bite himself so hard he leaves bruising is gut wrenchling heartbreaking. But at the same time I do not have a clue what to do. I don't yell at him for it or tell him off because he's never responded well to discipline. In fact it's a trigger to him. If I tell him off because he's having a meltdown all it does is further fuel the meltdown and causes more harm to him in the long run. I try to be kind and positive and loving in all my interactions with him but then I catch crap from my parents for "being too soft".

Recently at my nephews 1st birthday party I tried more than anything to get my son to join in, he hit himself and when I tried talking to him he punched me so hard and with such force I had a bruise on my eyebrow the very next day, but what destroyed me the most was the hate and anger in his face. He's hit me before but it's always been accidental as a consequence of him just flapping... But this was deliberate and with all his strength. The very next day however he woke up and was extremely distressed by the fact he'd hurt me and kept apologising.

2 days later my daughter told me my son was "trying to kill himself in the bathroom" I ran to the bathroom to find him trying to stab himself in the neck with a blunt cut off of the shower shield. He told me he wanted to die because his sister was cheating at a game they were playing. This is something I hear alot - minor things set him off into wanting to die.

It worries me because he doesn't understand how final that is, but I live in a constant state of hypervigalance at home, I cannot go out because he get so anxious whenever he's away from home he has a meltdown. I feel trapped and exhausted and more so than anything else worried about my son's self harming, self hating behaviour.

I know he is a good boy and a very sweet, intelligent person with a lot of potential to do something great in life with the right guidance but how do I get us there without it being the death of one of us?

This is amplified by the fact my daughter has aspergers so my efforts on him seem to result in her being neglected. On top of that I also has aspergers and have battled clinical depression most my life. I feel trapped and then I feel selfish for feeling that way. I just want to help both my babies and not kill myself doing it.

  • Parties can be tough. The format appears to be inclusive, kids whos only connection is being an aquantance of the guest of honour are immediately made welcome and play happily with each other but the autistic child does not have the same experience often being excluded immediately as part of a tribal NT bonding ritual.

    I'm tempted to suggest not exposing your child to parties but not being aloud to go to parties because of an ASV can also be distressing. Perhaps the best way forward is to check whether he wants to go on a case by case basis and to make sure he is aware that he can take a time-out or leave at any time he needs to. 

  • Hi there are elements in your post that I can totally relate to with my son. The violence, self harm, talk of suicide and obsession with technology. About a year ago I was in the same situation. My son talked all the time of wanting to die, lashing out, hurting me etc. I really want to give you hope because all that (fingers crossed) is behind us now. Why? because at that time when I really couldn't take anymore and it broke my heart seeing how unhappy my son was was when things changed. I started with the GP and to cut a long story short it was moving him into a more specialised school that changed everything. You mention his starting a resource school next month - is that one that understands autism? If so I would imagine this terrible time will come to an end for you. Hang in there. That time when my son was suicidal and I felt I was in a violent relationship is probably the worst of my life that I never imagined would end but the change in school really did turn it around. Shout for as much help as possible and people who claim your too soft of anything else ask yourself if they have a clue what they are talking about because it sounds like they don't. You know your son like noone else trust your own judgment. I'll be thinking of you x

  • FrustratedMummi said:

    I would have gladly avoided the party but my brother and mother would likely have given me none stop grief for missing my nephews 1st birthday party

    I know I'm not a perfect mother, far from it, but the obsticles of my own family make dealing with my son and daughter's issues the more stressful and complicated.

    I wonder if it would be helpful for the mother and brother to read this thread that they might understand the distress they are causing two generations of their family by insisting of NT social behavour.

  • Former Member
    Former Member

    His ability in reading gives you the opportunity to praise him and build up his self image. Can you encourage and channel this into a really positive direction?

    can i really encourage you to overcome your reticence about joining a support group? You will really benefit from having a network of friends who you can share your problems with.

    Have you told your GP or camhs about his self harm? This is a desperate cry for help and i think you all need some emergency help.

  • In some ways the 3 of you being on the autistic spectrum is a sort of blessing as none of you are pulling against each other to socialise.  It would  be harder if you were outgoing and your children were not as you may not be as tolerant as you are may feel compelled to get them socialising or you may resent not being able to go out because they are holding you back.

    In many ways you are perfect for them. You understand the need to socialize but more importantly you recognize the discomfort it brings.

    Sometimes finding that one activity that you or your children enjoy can introduce you to like minded people and that share interest can develop into friendship.  

    I have always found keeping pets really great for children and adults too.  We have a dog and the boys, will happily talk to people while out walking her.  If having a pet is not an option maybe going to petting farms or volunteering may be less intimidating.

    Family can be supportive or a right pain.  From experience I would say that you need to take charge.  Be assertive, even if it goes against the grain.  So next time there is a gathering say how it's going to be.  They may even respect you for it or think you've lost your marbles...so what.   You do know what's right for your children so don't let your family make you feel guilty for putting them first.  

    My ex and his family are still in denial and sadly I think they always will be, so don't expect yours to change their ways anytime soon.  

  • Hi guys -

    Because of my aspergers I find social situations very intimidating even within the family. I don't think my family accepts my diagnosis or is willing to accomodate my discomfort to social situations. So I am expected and almost bullied into going to occasions I don't particularily want to go to. I find it difficult to go outside alot I find most people violate my personal bubble far too much. This means that I don't try to socialise my son or daughter because I tend to keep very much to myself. The irony is I am a very lonely person and I crave company but I just cannot put myself out there to build lasting relationships in any manner.

    Most of the people I believed to be my friends have ditched me at some point during my life because aside from the fact I tend to say the wrong thing a lot of the time I've battled clinical depression since I was 18 (I'm approaching 31) so during the really dark times when I've struggled all I've heard is how much of a downer I am or how they'd make plans without me to avoid being around, steadily I just stopped trying and stayed inside. I take this attitude to heart and just cannot lower my barriers to let people in even if I could over come the initial anxiety behind it.

    I would have gladly avoided the party but my brother and mother would likely have given me none stop grief for missing my nephews 1st birthday party and being that I am a single mum I don't really have anyone I could leave my son with to attend myself. Not that I would really want to because I don't want him to view my leaving him as a form of punishment or something else similar.

    I know I'm not a perfect mother, far from it, but the obsticles of my own family make dealing with my son and daughter's issues the more stressful and complicated.

  • it is possible that his self harming resulted from being in the wrong school environment and that now he is going to a school better able to cope with his needs things will improve.

    I would say that while he is in such a high state of anxiety I would avoid any socialising that he is not comfortable with and take baby steps that he is comfortable with.

    How does your aspergers affect the way you parent?

  • Hi all thanks for the posts.

    He is obsessed with the computer or anything technological. He is incredibly clever using a PC. I like online gaming and have gamed for 13 years but what my son can do blows me away. He's even constructed and fully rendered a 3D model. But his obsession with technology can have a detrimental affect on us. For instance if we leave the house at any point I must take the ipad with me because when he has a meltdown it's the one thing that calms him (or well an APP called living aquarium calms him) - He has a bag we take with us everywhere full of visual and fidget toys, ear defenders and a book on Minecraft (which is another obsession of his).

    His sight reading was measured in the 85% percentile whereas his maths and written English were unable to be assessed due to him not cooperating with the test and not writting at all respectively.

    He barely speaks and the best time to talk to him is when he has something technological in his hands because he will talk about that, you can then manipulate the conversation to get him to talk about whatever is upsetting him, hurting him, distressing him as long as you keep it loosely related to technology or minecraft he'll talk about it.

    CAHMS made the diagnosis and then discharged him. His OT claims he's tried a weighted jacket, blanket etc etc with Henry but that he disliked them. However hugging him is one great way to bring him down during his high stress times, which is probably because it supresses his central nervous system (Temple Grandin - Cow hugging machine and all that!)

    His seperation anxiety from me and his distress and anxiety in general is something I feel he needs help with. His new teacher at his new school (who I've met) informed me that CAHMS shouldn't have discharged him based on this fact so I've asked my doctor for a re-referal.

    I guess I found the whole thing over-whelming. I've spent a small fortune on my kids. Buying memory foam mattresses for their beds, sensory lights for their rooms, liquid timers and fiddle/fidget toys for my son, chewlery for my daughter. I have heard of the family fund but I am still on a waiting list for a 3 bed house becuase my children need their own space and I'd rather wait until they have their own rooms to spring for a grant to help me do something sensory with their rooms. I have looked online to see if their are support groups near me (Stockport) but I've not had the best luck over the summer holiday.

    I would also find it difficult to attend these groups myself because I am litterally terrified of new social situations and strangers and the anxiety it causes me can litterally make me wanna crawl inside a shell and stay there. Which you could probably put down to my aspergers.

    I'm prone to panic initially as a knee jerk reaction but reading your words has helped me feel a little calmer. I must continue to fight for my kids and seek help when things get rough.

    Thanks ^_^ x

  • Former Member
    Former Member

    one of the messages that i would like to get across is that there are things that can be done to help your son and that you are not alone in your struggles. :-)

    Can I ask what your son can do? Can he read? Does he have any special interests? What can he get absorbed in?

  • The fact he can hurt himself suggests his pain threshold may be lower than normal, and he may even be having difficulty relating to when he injures himself. Hyposensitivity in autism is manifest where the child has a high pain threshold, can take more pain, and may self harm. The child may benefit from weighted jackets, blankets etc which are calming. There may be difficulty hearing, and may be unaffected in crowded noisy places

    I've taken this from the NAS website at www.autism.org.uk/.../the-sensory-world-of-autism.aspx but you can find this going through the above stages in the menu. The detail on hyposensitivity is page 3.

    It is important to establish which type of sensitivity he has - hypersensitivity (the opposite) involves being touch sensitive, not liking clothing, reacts adversely to brushing, having difficulty filtering background sound, and being sensitive to sound. But this is very oversimplified, and some people manifest both attributes for different situations.

    Low self esteem is a critical issue. If you cannot communicate effectively, and get rejected by others for not being able to interact properly, and made to feel different, a child may feel very negative and seek oblivion. You need to give your son positive messages and help him find positive aspects.

    Socialisation is difficult. Many parents try to get their child to socialise thinking this will somehow resolve with practice, which it might, were it not that the negative aspects, and streess caused, may far outweigh any benefits.

    Feeling suicidal is hardly surprising if you experience daily rejection, communication barriers, and often insults (verbal, physical etc) from surrounding environment.

    Try to find a parents' group, as recombinantsocks suggests. The little red maps on the home and community pages of the NAS website will help you find the nearest to you, but if this is at some distance, contact them all the same. They may be able to tell you if there is something available locally that's small or not well advertised, and a distant parents group can still offer advice, training session and formal events that you could attend to meet other parents.

  • Former Member
    Former Member

    Have you been on any of the training that is available for parents of autistic children?

    Have you looked at joining a local support group for parents?

  • Former Member
    Former Member

    Totally agree with Lydia, you need specialist help.

    The other comment I have is that although it would be nice for him to join in at parties it might be the most hostile and unpleasant situation for him. The other children can be too strange for him to deal with and the noise can be unbearable.

  • sorry it won't let me carry on with that post for some reason. You sound like a fantastic mum who, despite her own struggles, is always there for her kids. I really hope things improve for your little boy.

  • What a terribly sad situation for you all. It sounds like he just feels so confused and unable to communicate. It must be horribly isolating for him, but it is by no means your fault. You are right to try and deal with difficult behaviours with love and understanding. It sounds like maybe his inability to communicate is really damaging his self esteem. Do you get any help from services like CAMHS? If he is self harming, unstable and suicidal, it really does seem like he needs the input of some child mental health services. Certainly he might benefit from some work on building his confidence. In the meantime, keep on loving both your children. You sound like a fantastic