Aspergers and suicide

This is my first post here. Initially I was going to make a blatant plug for my NAS fund raising bike ride but then thought a word of caution would be better.

Our son, Russell, was always "different", he was the boy who got into trouble, didn't concentrate, struggled to write clearly, did the absolute minimum at school to get by.

He had lots of good friends and his teachers liked him. There was nothing malicious about him.  He was branded by some teachers as a lazy, easily distracted, naughty boy.

We went through all of methods to help him to succeed.... My wife once said to an advisor " don't show me another Star Chart or talk about removing privilidges." We'd tried it all.

We went down the ADHD route, some support at school came & went. There was no continuity. Each time a helpful assistant left we went back to square 1.

Russell didn't want to be seen as different he just wanted to get on with his life, obsessively playing computer games till all hours, reading and absorbing info on his specialist subject, physics. He started to shut us out in his late teens, became reclusive, only venturing out of his room for food, at all times of day & night. We tried to talk to him, to help, to guide him but he became aggressive and we feared driving him further away.

He spoke of suicide but refused help. I took him to see his gp about suicide threats. Russell said he was OK, doctor left it at that.

He passed his A levels and started at university last year. After 6 weeks the police called to tell us that he had committed suicide in his uni room.

We don't know why, was it social difficulties, peer pressure, not enough love, not being able to conform. We always told him that great scientists were often abstract and questioning.

Only after speaking to his friends recently did we find how much he loved our time together, camping, cycling, kayaking, climbing and other things we did together. If only we knew at the time.

We now live with "what if's" and unanswered questions.

Please, if you see or hear any suggestion of self harm take it very seriously. We don't know what we could have done differently, we did our best but it wasn't enough. We sought advice but the "experts" let Russell down.

We miss him every day, he was sometimes a pain but you don't always realise what you've got till its gone.

Back to my bike ride..... I hope that the loss of our son is not totally in vain. I'm doing a 100 mile ride for NAS in his memory. I'm sure he'll smile while I struggle along . If you want to donate go to www.just giving.com/markdixoncycling 

Thanks for listening.

Mark

  • I am really sorry for your son and you. I am sure that with time, your love and the wisdom that age brings he can begin to be happier and realise his potential for a fulfilled life. Best wishes to you both

  • My son is 12 and attempted to take his own life 4wks ago after a huge meltdown, you are so right I to was on the phone to various different professionals expressing my concerns, the day after it happend I rang CAMHS with huge concerns over his mental/emotional state and was told if I was at all concerned take him to A&E!!

    After constant phonecalls from myself to CAMHS relaying my concerns they eventually agreed to see him once a week which he is due to have his last session on thursday, then what he will go back thinking just when he is starting to open up that thats it they dont want to know anymore.

    If anything you can take comfort from knowing that your son really enjoyed the time you spent together, but i do understand the thinking "what ifs" I am doing this and my son only attempted suicide.

    Good luck with your bike ride, your son will be forever in your hearts. Best wishes. Take care.

     

  • I am so sorry. That is terrible and so sad, I can't imagine how awful it must be for you and your family. I hope you take some comfort from knowing how much he enjoyed his time with you , and also from knowing that you did everything you could for him to help him and show him love. Good luck with your bike ride. Best wishes and thoughts.

  • Hi Mark

    Your story has hit a cord with me.  My son's will soon be off to uni and on the one hand I want them to be independent and yet I worry about how they will cope.

    I read an article by Simon Baron-Cohen who said that uni's need to wake up to the fact that running courses that insists students had to attend lectures just doesn't work for many aspies, who can do just as well if not better if they are allowed to study independently in quiet environments.

    Sadly this archaic belief is the foundation of many schools as well who cannot get to grips with the fact that forcing a child to attend lessons with 30 other kids is better than allowing the child to work on their own.

    It is possible that this was not the reason why your son took his life.  It is hard to know what is going on inside someone's else's head.   All we can do is be their for them when they let us. 

    Keep strong and remember the good times and how they made your son feel, which is   loved.

  • Hi Mark - I'm so sorry.  Our children are so very vulnerable.  Years ago I went to a seminar organised by the nhs about suicide.  Part of the seminar dealt with how those left behind find it so difficult to cope with.  The seminar didn't mention autism, which I suppose speaks volumes in itself, but many who have lost a loved 1 to suicide will feel an affinity with you.  I really hope your bike ride is brilliant + does the nas + yourself the world of good.

  • That is awfull mark it really is,why dont proffesionals listen? i also agree about not beating yourself up,its blooming well hard,ive been fighting hard to get my son diagnosed and this post has made me want to fight my sons corner  and keep fighting till we get him the help he needs.

    Im so sorry for your loss mark i truly am its heat wrenching xxxx

  • Former Member
    Former Member

    Mark,

    Your post has taken me back 30 years to my physics friends and to my son's friends (S also a physicist). One of my best mates, Iain got a first class degree and was well down the road to getting a PhD before he comitted suicide. One of my son's friends got within weeks of his finals, was on track for a 1st and killed himself. 

    This has me in tears at the breakfast table writing this reply as you just want to cry out at the senselessness of it. They never knew how good life can be nor the anguish they left behind them.

    Don't blame yourself, don't blame the experts - they are only human and sometimes it needs a miracle to break through into the inner world of these kids. We are only human and miracles don't come easy to us.

    Remember him always but don't beat yourself up for not doing something that you didn't know how to do.