Hi everyone,
I’m reaching out because honestly I’m feeling lost at the moment and hoping to connect with other parents-or anyone with lived experience-who might relate. It would be super appreciated.
Son has been finding evenings and bedtimes really difficult for, well, their entire life but lately it's been exacerbated. They often become overwhelmed, struggle to settle (jumping around, turning lights on and off, eventually climbing in my bed, pushing and shoving etc), and the whole build-up to bedtime feels like a huge hurdle.
In the mornings, school has become even harder. Son has always expressed that they hate school, but in primary we managed a routine that worked: I’d take him to his grandparents in the morning in the car, and he would walk to and from school with his granddad. It wasn’t always easy, but it was manageable.
He recently moved up to high school, and everything has changed. He’s now refusing school entirely, especially since half term. He’s bright academically but struggles socially and emotionally. Bedtimes and mornings have become emotionally intense and exhausting for both of us. The days can be difficult too, trying to implement routines etc but they are manageable. Son does not want to be seen as different and is struggling to accept his ASD diagnosis, he was finally given it recently aged 11. The ND practitioner has put ADHD as under review on his file, hoping the support he receives from his ASD diagnosis covers that too.
I’m trying so hard to support him, keep communication open, and work with his school-while also keeping our routines predictable and reducing pressure where I can.
Despite all this, I feel like I’m out of my depth. I want him to be happy, feel safe, and know I’m on his side no matter what. But the constant worry and the ongoing battles are starting to take a toll on my own mental health (it's affecting my work etc), and I’m just not sure what else to try.
If anyone has been through similar-either as a parent or from your own childhood experience-I’d be really grateful to hear anything that helped you or your child, what didn’t, or even just to know we’re not alone.
Loz