13 year old - low mood and losing weight rapidly

My daughter (13) is diagnosed with ADHD and Autism, she has always been a quiet, solitary child but was generally comfortable at home as long as we gave her space and let her come to us. Recently she has become severely withdrawn, deleting WhatsApp so she doesn't have to communicate with friends from school (there hasn't been a fall out or bullying ive checked, her friends are as confused by this as we are) she just lays in her bed all day and only really talks in as short sentences as possible and honestly usually quite rudely. She has also lost a significant amount of weight in the last 3-4 months. She was never a big girl, a women's size 10, but she has started exercising every day, and gets quite upset if we have plans that prevent her exercising. She won't go to bed until she's done her workout video no matter how late it is. I have had to buy her new clothes this week because all of hers are hanging off her, she's gone down at least one dress size as well as a cup size in her bra's. She eats breakfast and a small dinner with us but ive been checking her school account and she seems to only be buying drinks and fruit pots. She claims that she's sharing meals with friends but I don't believe her if I'm honest. If my calculations are right she's eating about 800-1000 calories a day which is way below what she should be eating, however she's not hiding food, or being secretive in other ways so I don't know if were looking at a potential eating disorder or normal teenage girl body issues. 

Im very concerned about her at the moment between the eating and the low mood, her anxiety is high and she has begun wetting the bed again. The school is aware but is, in all honesty, a bit useless. Just doing surface level interventions that in reality help nobody.

Im waiting for a CAMHS appointment but I just wondered if anyone had any advise on getting her help or how best to support her, I'm terrified of saying the wrong thing and making everything worse. 

Parents
  • Could she be in burnout? For myself, when the outside demands (which includes communicating) all become too much I start restricting my food as it's one thing I can control and the demands of having to eat is just too much. I am autistic with PDA profile. If she ends up under CAMHS and eating disorder services it vitally important they know how autism impacts her with food and eating. It's all too common that they ignore that and try to treat an eating disorder in the only they know how which can cause more harm to an autistic person. It might be worth a GP appointment and getting bloods etc done as it's the speed of weightloss that can cause health problems.

    I hope I haven't spoken out of term, I'm going off my own experiences and from other online groups I'm in. There's a supportive Facebook group Autism and Eating Disorders for both adults and parents.

  • No, no you haven’t spoke out of turn at all. I actually think your scenario is more likely than an Eating disorder tbh. She is diagnosed with ODD and the low mood was there before the eating issues. This is why I’m worried to mention the eating to CAMHS because I don’t want it to overshadow the very obvious anxiety issues that I’m seeing. 

Reply
  • No, no you haven’t spoke out of turn at all. I actually think your scenario is more likely than an Eating disorder tbh. She is diagnosed with ODD and the low mood was there before the eating issues. This is why I’m worried to mention the eating to CAMHS because I don’t want it to overshadow the very obvious anxiety issues that I’m seeing. 

Children
  • Thank you for this. Yes I will say clear boundaries is definitely what’s needed for her. Positive reinforcement has to be done in the correct way so as not to make the situation worse. It can definitely backfire if done wrong. I’m hoping CAMHS will help with a therapist because I agree, as much as she does still confide in me, a neutral person who isn’t her mum would definitely help.

  • ODD is oppositional defiance its similar to PDA.

    I notice the approach for dealing with ODD is quite different to PDA. Taken from the article https://inclusiveteach.com/2025/03/09/pda-vs-odd-key-differences-explained/

    For ODD they suggest "Set clear boundaries, positive reinforcement"

    Does she see a therapist? If so it may be worth asking them to talk about this with her and alert you if there is any action required, so long as it is in line with their ethics on disclosure.

    If she doesn't have one then with ASD, ADHD and ODD as disgnoses then I think having someone she can confide in and who can offer her help to deal with all that is going on during will be of a lot of benefit to her.

    I don't know if the CAMHS or your GP can help with this or whether it would have to be private.

    The teenage years are often a time for the teenagers to pull away from their parents (they are not cool obviously!) so having this safe person to talk through her issues with and practice coping techniques with should help her in the transition to adult life.

    It is never a cheap option of course - I think about £50/hour is the norm and will soon add up.

    I also noticed some advice on strategies for coping with the ODD element:

    https://drroseann.com/deal-with-oppositional-behavior/

    I've not researched this in depth so cannot say if it is good or bad, but it appears to make sense. Just remember any CBT based therapies would need to be adapted for her autism as they do not typically work for us in their native format.

    Good luck

  • Thank you. I appreciate that. ODD is oppositional defiance its similar to PDA.

  • You sound a caring and supportive mum

    What is ODD?

    If it were me, I would reduce demands where possible.