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Just looking for a bit of reassurance I think

Aimee14x

Hello everyone,

I'm new here, my 4 (nearly 5) year old son has just been diagnosed today. 

I feel very mixed feelings, it initially felt like a relief when they told, they the experts had seen what we've been dealing with at home and out and about (masks perfectly at school). However now I just feel slightly confused, it's like it's all boiled down to getting this diagnosis and now I have no idea what to do.

As he masks so well at school his current teacher showed no concerns at all ( a pre-school teacher from the same school who has now left agreed with us and filled in the forms, no idea what she put but the experts today agreed with what she said too). The assessors today said school should be able to put things in place to help him as they sense areas he will need help, however how do I go about this. I'm still waiting for the report so will read it all properly before acting. 

I just feel a bit lost and mixed up and no idea where to really go. 

Sorry it's about lengthy, also called them the experts as I can't remember what their job titles were. He is very high functioning and does masks very well in situations so I just want to be able to get him and give him support he actually needs to suit him.

Thank you Blush

Parents

  • In some ways the ability to mask well will mean that your child will be able to navigate social pressures with greater success. However, masking is the result of intellectual effort; what comes naturally, with no effort, to allistic (non-autistic) children and adults is the result of heightened vigilance and the conscious copying of others in autistic people. Obviously, this comes at a cost in exhaustion and anxiety. Imagine that your child is an actor all of the time he is in a social setting, he has to remember his lines and stage directions constantly. At home he may need to have more alone time and time not interacting with others, even family, in order to recover from the social pressures of school. I am autistic (diagnosed) with an adult autistic daughter.

  • in reply to Martin

    Thank you for your kind response. I feel like you nailed it perfectly with what you said at the end and by you saying it has just made it click into place in my head. He does come home from school aBlush want to be alone, or wants to watch TV on his own. I guess he feels safe at home that he can be his wonderful natural self and we need to learn how best to support him in this Blush

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  • in reply to Martin

    Thank you for your kind response. I feel like you nailed it perfectly with what you said at the end and by you saying it has just made it click into place in my head. He does come home from school aBlush want to be alone, or wants to watch TV on his own. I guess he feels safe at home that he can be his wonderful natural self and we need to learn how best to support him in this Blush

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