ASD burn OUT_advice for adult

Hi all,

My partner has what I think is asd burnout. i am looking for advice from anyone who has worked through this minefield to the other side
. Background - we have been together 10 years. My partner has asd diagnosis and would be considered high functioning [ works 25 hours a week ]

Over the last few months, her asd issues have multiplied 5-fold at least. 
Lots of shouting or going bed for half a day or all day, followed by feeling rubbish because of shouting or being in bed all day.
Self-care has dropped right down its a struggke to get ther ti eat at least 3 days of the week.  

i really need the advice.

i find the advice in sites like this to be very weak

  • give them space = done, but has not improved things
  • be calm and do not blame = done  and of course
  • encourage her to do her special interest to get more spoons = have always done this 

i make a massive effort to make life smooth for her, so as not to trigger a asd moment, but it's now almost impossible to have a day without a shutdown or meltdown.

Today was 10 minutes late having a bath this cause a shut down and has been in bed all day, and totally non-verbal :(

i am exhausted trying to support her, and if  i am exhauste,d she must be triple exhausted 

Any thoughts appreciated 

Parents
  • Does she see she has a problem?

    I assume you can't miss it, but when you are disregulated or have disfunctional thoughts it might not be obvious.

    Is she still working?

  • Demands need to be reduced. If working this will be using all the energy. She should probably be signed off work.

    Giving space does not mean for an hour or two, she needs to on her own most of the time. Consider sleeping separately.

    Minimum conversation as communication is hard. Rest, alone. No stress.

    Reduce sensory input, particularly sound.

    ️She needs to recognise what is happening and what is causing stress.

    She may be confused, not recognise or remember what she is doing, struggle to say what the issue is.

    She may also be depressed. Depression goes with it.

    It may take a long time to recover, as in months. It may be hard.

Reply
  • Demands need to be reduced. If working this will be using all the energy. She should probably be signed off work.

    Giving space does not mean for an hour or two, she needs to on her own most of the time. Consider sleeping separately.

    Minimum conversation as communication is hard. Rest, alone. No stress.

    Reduce sensory input, particularly sound.

    ️She needs to recognise what is happening and what is causing stress.

    She may be confused, not recognise or remember what she is doing, struggle to say what the issue is.

    She may also be depressed. Depression goes with it.

    It may take a long time to recover, as in months. It may be hard.

Children
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