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An awful day - pre diagnosis

Balloonflight1925

Hi,

I’m not really sure why I am posting other than we’ve had an awful day and I need to know I’m not going crazy.

My 8yo has not been diagnosed but we are pretty sure she has autism (we did a self referral previously but because of masking at school it didn’t work, but we are now working with the school on a referral).

Shes high masking so we get the worst of it, and most people might think she was a little odd/introverted but not neurodivergent.

we’ve had a lot of change in the last month - I’ve started a new job so our routine is different, I am around less and her dad is doing more of the childcare around school. Plus a few other small things have happened in the past couple of weeks that probably had a cumulative effect.

It was her birthday today and honestly it’s been the worst day. She woke in a bad mood because she was expecting to be the first one to wake up (we’re not sure why) and threw several gifts because they were not what she wanted. 


There have been tears on and off all day. Birthdays are always tough (not just hers) but this has been the worst. She seems ok now she’s had a normal evening routine and gone to bed, but I still feel shellshocked.

I guess I’m looking for a little solidarity and maybe some tips? 

Parents

  • Hi Balloonflight1925,

    It sounds like yesterday was a challenging day for you as a family. I hope you are all having a brighter day today.

    It could be helpful to take a look at our information on Meltdowns, It has some guidance on what can be done to help in the moment as well as how to anticipate meltdowns. The NAS also has a guide on Dealing with change.

    I hope everything goes well in your referral for your daughter, sometimes it can be beneficial to keep a written record of behaviours when going into assessment as it can be hard to remember examples on the day.

    Thank you for reaching out.

    Olivia Mod

Reply

  • Hi Balloonflight1925,

    It sounds like yesterday was a challenging day for you as a family. I hope you are all having a brighter day today.

    It could be helpful to take a look at our information on Meltdowns, It has some guidance on what can be done to help in the moment as well as how to anticipate meltdowns. The NAS also has a guide on Dealing with change.

    I hope everything goes well in your referral for your daughter, sometimes it can be beneficial to keep a written record of behaviours when going into assessment as it can be hard to remember examples on the day.

    Thank you for reaching out.

    Olivia Mod

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