• Replies 4 replies
  • Subscribers 69 subscribers
  • Views 734 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

An awful day - pre diagnosis

Balloonflight1925

Hi,

I’m not really sure why I am posting other than we’ve had an awful day and I need to know I’m not going crazy.

My 8yo has not been diagnosed but we are pretty sure she has autism (we did a self referral previously but because of masking at school it didn’t work, but we are now working with the school on a referral).

Shes high masking so we get the worst of it, and most people might think she was a little odd/introverted but not neurodivergent.

we’ve had a lot of change in the last month - I’ve started a new job so our routine is different, I am around less and her dad is doing more of the childcare around school. Plus a few other small things have happened in the past couple of weeks that probably had a cumulative effect.

It was her birthday today and honestly it’s been the worst day. She woke in a bad mood because she was expecting to be the first one to wake up (we’re not sure why) and threw several gifts because they were not what she wanted. 


There have been tears on and off all day. Birthdays are always tough (not just hers) but this has been the worst. She seems ok now she’s had a normal evening routine and gone to bed, but I still feel shellshocked.

I guess I’m looking for a little solidarity and maybe some tips? 

Parents

  • Autistic father of an Autistic daughter (age 7).

    C is a loving, beautiful girl with a wild imagination. But she has her bad days. And woo boy can they be bad. I honestly could see her being upset for not waking up first just like your daughter. That sounds just like C.

    She suffers when there are strong smells and loud sounds, so we had a blowup on Mother’s Day because her grandma brought some really smelly fried chicken to a loud playground. Almost ruined the whole lunch, but we managed to calm her by having her smell some pineapple.

    We are also going through difficult changes, too. I’m currently living 2 1/2 hours away five days a week for a new job and it’ll be two months or so and C will be moving this way with her mom and sister. That’s a huge burden for a little Autistic girl.

    So, no, you’re not going crazy. If you are, then I am too, lol.

Reply

  • Autistic father of an Autistic daughter (age 7).

    C is a loving, beautiful girl with a wild imagination. But she has her bad days. And woo boy can they be bad. I honestly could see her being upset for not waking up first just like your daughter. That sounds just like C.

    She suffers when there are strong smells and loud sounds, so we had a blowup on Mother’s Day because her grandma brought some really smelly fried chicken to a loud playground. Almost ruined the whole lunch, but we managed to calm her by having her smell some pineapple.

    We are also going through difficult changes, too. I’m currently living 2 1/2 hours away five days a week for a new job and it’ll be two months or so and C will be moving this way with her mom and sister. That’s a huge burden for a little Autistic girl.

    So, no, you’re not going crazy. If you are, then I am too, lol.

Children
No Data