Colorimetry assessments and coloured glasses for migraines

Hi, my daughter is suffering crippling migraines due to stress, anxiety and sensory overload, but due to being 16 the Dr is reluctant to prescribe her the stronger medication due to her age. I'm AuHD and have the same migraine problems and only recently found Sumatriptan after being admitted to hospital with a severe migraine, it's the only thing that works for me and after research found it is the one prescribed that works best for autistic migraines which I never knew was linked. Has anyone else got a child who uses it, she has tried it once and it worked perfectly, on the packet is says can be used for children over the age of 6 but the Dr wouldn't prescribe it.

I have also just researched colorimetry assessments as she has just started using colour overlays which she is finding really useful. I was wondering if anyone else has had this test done, it's not available on NHS and £200, I'm a bit reluctant to spend that amount of money if it doesn't help. I was wondering how much help coloured glasses actually help people who suffer with these type of migraines or even help with anxiety before I book her in for the test?

Many thanks x

  • The list of foods I can't eat is getting ever longer, I think this is more likely due to suspected diverticulitis, which I'm being investigated for, than anything ASC related.

    I can't eat fresh pineapple as it makes my gums bleed, I'm fine with it cooked, like in a pineapple upside down cake, but to be honest I'm not really a fruity person, I really dislike most tropical fruits, like mango's and passion fruits.

  • I sniff rosemary, either the herb from my garden or the oil, add it too body lotion or something, rosemary raises blood presure, lavender lowers it.

    Bananas don't like me and give me terrible digestive problems. I used to find proper ale helped, real beer, I guess it might be something to do with the microorganisms in it, but unfortuantley I can't drink alcohol anymore. I try and have marmite on toast fairly regularly instead.

  • Oh wow. I make sure to have a micro-pinch of salt every morning, which seems to help. A banana is good, too. Many things can further lower our blood pressure, such as alcohol, tonic water, certain blood thinners and a strange assortment of foods. More salty foods such a sea-things, oranges and olives help maintain. 

    When the weather gets warmer or nicer, it tends to be due to air pressure going up, like diving deep into the sea, which seems to be the only collective group who can recall that air pressure affects humans in ways we're wise to never forget. Our great-grandparents would've known this. And enough of a search shows that sudden shifts in air pressure are among the bigger causes for heart failure (not to scare you - just mind this is a real thing and one of the many reasons we cannot survive on other planets).

  • I keep getting told my BP is nice and low, right up until it crashes! In hot weather low BP is a big problem as it can cause over heating, but nobody in this country takes it seriously, they do in hotter countries. My BP has been as low as 70/50 and I'm a little light headed, but still upright and talking when apparently I should be unconcious!

  • Thanks, we've done a food diary and nothing is linked. She is on the pill which has helped with her temper but hasn't made a difference with how many she gets.

  • I kept a food diary to see if any foods were triggering migraines and excluded the ones that were, for me it was chocolate and oranges, I can either seperately, but not together, so no more chocolate oranges for me.

    I also sought help from an osteopath who did some cranial work on me, it was amazing I went from a migraine every 2 weeks too one or two a year.

    I never found coloured overlays or anything helped with migraines or dyslexia.

    I did find things like the contraceptive pill made them worse or anything else that messed around with my already messed up hormones

  • Thanks, that's a good idea. She saw a private pediatrician who was happy to prescribe it but her NHS Dr won't and can't keep going private. That's a good idea to see a neurologist as getting them nearly every day.

  • I too have found Sumatriptan to be very effective on my migraines. On looking at the NHS site, I found the following, "Sumatriptan is not officially approved for children. However, a specialist doctor may sometimes prescribe it for a child aged 6 years or over." This would explain why your GP was reluctant to prescribe it. I think that you may have to ask for your child to be referred to a specialist neurology clinic to be assessed by more specialised medics.

  • Colour overlays are great for dyslexia, too. 

    I'm not a doctor but I can tell you how I manage stress and stress-induced-anxiety (linked to sensory overload), which is through functional mushrooms including Reishi and Lion's Mane. These are the sort you can occasionally find at the shop and there are many others which are like having a mushroom salad. (not psychotropic). My son takes a gummy by Feel Güd. I've also heard these are quite good https://kekanaturals.co.uk/products/mushroom-gummies?customer_posted=true#newsletterForm-812e4b375a15 

    From what I've read our immune system, hormones, gut and GABA all work in sync. There's a good amount of research on how GABA helps the flow of filtering and signalling in the brain, and appears to be lower in many autistics and ADHD'rs leading to more anxiety, a sense of everything all at once, sensory overwhelm, and stress. I have a prescription for this to take once a month when I need something more strong in a pinch, but I'd never take them for more than 2-3 nights in a row. 

    I've also done a great deal of work at decreasing external stressors such as halogens only in the bedroom and when reading at night (halogen heaters are amazing energy savers as they double as light!), replacing all products with toxic chemically designed smells including cleaning products (no candles or other scented things unless its natural). VOCs can be a big problem for some of what you're describing. Scents have been found to interfere with our endocrine system. I have a Briiv air filter and had gotten a Dyson in the last flat I lived as certain things were giving me vertigo. It turned out there was formaldehyde and other off-gassing. And then there's incoming research on polyesters/nylons, which are becoming more of a problem than suspected, also affecting hormone balance from what I'm reading. But I started wearing 100% natural fibres, especially wool which is said to help regulate human temperature and it does the trick for 11 months switching to cotton when it's over 17*.

    Around her age, I started having a great deal of unknown gut-health issues, brain fog, stress and overload. I also had low blood pressure and needed more salt in my diet, which no one told me at the time. Everyone is different, so it's always good to see a GP and get bloods checked.