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Not coping very well at all

lukes mummy

My son was diagnosed at three , I just wondered if anyone else felt like I do . normally everything is fine and I cope really well but well it's probably a lot to do with it , I've just lost my mum a few weeks ago and I'm just struggling so much with him. It's Easter hols and as usual if things don't go his way he tells me he hates me and can get quite aggressive. He doesn't want to do anything , bath or shower and he has now twigged on to the melatonin in his drink at night so he says he's not thirsty and I'm sat on his bed until half ten at night sometimes longer. He's nearly seven and I just feel exhausted , my husband works full time for himself and long hours so he helps when he can. I just feel that this is my life forever and it feels so hard and tiring and to be honest I feel like I want to run away. I won't but is this normal? I'm on anti depressants, I have been for about eight months now , but I just feel so low at the moment. I don't even know why I'm writing this on here , hopefully someone will say that they have been through the same and it's not just me. I feel like a terrible parent.

Parents

  • Hi Luke's mummy,

    I've ever so sorry to hear about your loss, I know when I lost my mum the pain seemed to be so consuming at times and especially caring for a little one with autism can be emotionally testing at the best of times never mind when other live events take you by suprise. Don't forget how much inner strength you have and that you are human too and need a break.

    I agree with misskittykat, just take one day at a time, look out for the little things that make you smile and try to focus on the here and now. Mindfulness can really help in times like this. Sending you a big hug  

    I don't know if this would help you Luke's mummy, Leedsstar and miskittykat too but I wanted to ask any parents out there with sons and daughters with autism about what they think about a potential support group open to all. I currently work for a not for profit organisation that have just set up an autism service in York and although we work directly with adults with autism, we are really keen on running a monthy carers group where parents (of all age children/adults) can support each other, pick up skills on how to look after yourselves whilst caring for your loved ones, increase understanding about your childrens needs etc. I am a psychologist by training so would be keen on making sure the group has access to latest research and invite speakers. Do you think people would be interested?? It would be really great to hear from anyone that might be?? my email is [removed by moderator]

Reply

  • Hi Luke's mummy,

    I've ever so sorry to hear about your loss, I know when I lost my mum the pain seemed to be so consuming at times and especially caring for a little one with autism can be emotionally testing at the best of times never mind when other live events take you by suprise. Don't forget how much inner strength you have and that you are human too and need a break.

    I agree with misskittykat, just take one day at a time, look out for the little things that make you smile and try to focus on the here and now. Mindfulness can really help in times like this. Sending you a big hug  

    I don't know if this would help you Luke's mummy, Leedsstar and miskittykat too but I wanted to ask any parents out there with sons and daughters with autism about what they think about a potential support group open to all. I currently work for a not for profit organisation that have just set up an autism service in York and although we work directly with adults with autism, we are really keen on running a monthy carers group where parents (of all age children/adults) can support each other, pick up skills on how to look after yourselves whilst caring for your loved ones, increase understanding about your childrens needs etc. I am a psychologist by training so would be keen on making sure the group has access to latest research and invite speakers. Do you think people would be interested?? It would be really great to hear from anyone that might be?? my email is [removed by moderator]

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