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Help what do I do? Parent of 29 yr old autistic son

NAS96549

Long story short but I am desperate for advice of how to navigate helping my son.  I have MS so struggle with my health so have taken my eye off the ball so to speak as well as my husband shoes focus has been me.

My son has a diagnosis of Autism in ‘21 and ADHD not diagnosed.

He is not working and has income, he finally agreed to let me apply for PIP for him but not hopeful as only supporting evidence is the report diagnosing Autism. He will not go to the doctors.

Homelife is difficult as he is awake all night scrolling and sleeping all day sometimes getting up as late as 6pm. We have tried getting him up, he is depressed and binge drinks at times.

His mood has always been low even as a child.  

We don’t have anybody to ask, I had an appt with my MS nurse and she is going to email me something.  Obviously it’s not her job but she can see it affects my health.

Any advice greatly received, thank you

Parents

  • That's a really difficult situation and it's hard to advise.

    The only thing I can think of is to talk to him in a direct way about how worried you are about him and that it's affecting your health, and that you are worried about his health too. Explain how not sleeping at the correct time (at night) can affect people's health and make depression worse, and talk about how his sleep pattern could be changed. Suggest he goes out for a walk each day, which can help with depression and sleeping, and that he turns on blue shade on his screens (which also helps with getting to sleep) Also ask him for permission to speak to your family doctor on his behalf for advice regarding his depression and to see if medication can be prescribed to help him.

    I hope things improve soon.

Reply

  • That's a really difficult situation and it's hard to advise.

    The only thing I can think of is to talk to him in a direct way about how worried you are about him and that it's affecting your health, and that you are worried about his health too. Explain how not sleeping at the correct time (at night) can affect people's health and make depression worse, and talk about how his sleep pattern could be changed. Suggest he goes out for a walk each day, which can help with depression and sleeping, and that he turns on blue shade on his screens (which also helps with getting to sleep) Also ask him for permission to speak to your family doctor on his behalf for advice regarding his depression and to see if medication can be prescribed to help him.

    I hope things improve soon.

Children