Struggling to support young adult son

Two of my four children have Asperger’s Syndrome and although my husband isn’t diagnosed, we all realise he does too. Sometimes he’s in denial about this but most of the time he accepts that he can see very close similarities between him and our boys.
My older Aspie son is now aged 20 and I’m finding it very difficult to continue being a supportive mum as he has ostracised himself from the family. He’s always been quite difficult but as he’s made the transition into adult life his personality has changed and he seems to have a lot of hate for his family and a distorted view of his childhood. I wondered whether there are any other parents who have been in a similar situation and where they have found support from?
I have read widely on Asperger’s and give my son the space he needs. I’ve been very understanding of his condition and have made allowances for him throughout his life and have also fought his corner and supported him through times of self harm and problems at school.
Last September he moved in with his girlfriend because he couldn’t cope with our request for him to contribute to the household financially as his older sister does. He has a job in IT and earns £30,000 a year! He also refused to play any part in family life and got angry and agitated if we so much as asked him to take a plate out to the kitchen! He was clearly struggling with his transition into adult and working life. But as far as I’m aware, he’s been a different person altogether with his girlfriend and her family and is seen as the model guy!
I’m really hurt by this, and from his withdrawal from the family over the past months which has now come to a head with him throwing us out of his flat on New Year’s Eve (because he simply didn’t seem to want us there – we’d only popped round for an hour to see his new flat!). He refused to take calls or to have anything to do with us on his birthday and has withdrawn from his brothers and sister too. We are a close family and this has been deeply distressing for us all.
We’ve seen him about three times since then – when he has popped round to pick up his post. Sometimes he responds to Whatsapp messages (my preferred method of contact with him as I can see if he’s read the message!) and other times he just ignores us. He’s refused to give us his phone number and has made it clear we’re not welcome to visit his home.
This weekend was his brother’s 18thbirthday and I’d politely messaged him saying that we expected him to see his brother on his birthday, even if it was just popping round. He ignored our messages and didn’t turn up on his brother’s birthday.
My daughter sent him a message saying how disappointed she was. And as a result both me and my daughter have had a stream of abusive emails from his girlfriend telling us he hates us and always has and that she won’t be encouraging him to have anything to do with us.
I’m struggling with all of this – as it opens up demons from my own childhood (I hated my mother but that was because she couldn’t show any love or support, only hatred towards me.). My only aim in life has been to be a good mother and my other three children all tell me I’ve done an amazing job of bringing them all up and they can’t understand why their brother is like this.
My husband has no empathy so can’t support me in this. I don’t want to burden my kids with my angst and I find other people with neurotypical families don’t understand just how devastating this all is. Which is why I’d like to find support from others who have suffered similar situations – in particular I’d like to make contact with other mums of young adult Aspies who also have a partner on the spectrum.
I need to work out in my head how my son can control himself when around his girlfriend and her family, yet be so hateful and nasty to us. Is it common for people with Asperger’s to take out their anger and frustration only on people they are particularly close to? If he can exercise control around his girlfriend and her family, why not around us?
Any advice or stories of similar situations greatly welcomed!
Parents
  • Hello Mumofmany,

     I too have a son with Aspergers who's struggling with a very difficult transition and much of what you mention sounds very familiar. On the flip side, I believe I am the undiagnosed Apsie of the family, given my own severe struggles through life and the diagnosis and struggles of my immediate siblings.

    For my own son, he struggles to manage money and has no concept of budgeting, so getting him to accept or recognize how the world works in terms of rent and commitments is non-existent. He is also impulsive and this can cause him and others, a great deal of angst as he tries to manage his everyday life.

    Unlike his older brother who also has a diagnosis of Aspergers, he has struggled to come to terms with it and this is compounded by his severe dyslexia as he is heavily reliant on his family to read texts and to help him comply with the rules that most of us have to abide by in everyday life. He seems constantly angry and frankly fearful, so like you we make adjustments, but at times he can be truely hurtful.

    Unlike your son, our sons job prospects are hampered by the severity of his needs, but his difficulties in finding and using tools to overcome those disabilities also exacerbate the situation.

    Fundamentally he's a good kid, he's never been in trouble, but his obsessive behaviour and impulsive reactions make him an easy target for being taken advantage of, or misunderstood. His failure to see the ill intent of others has left him penniless on more than a few occasions and for a parent to witness this is heartbreaking.

    He too wants to move in with a girlfriend, however, he has no understanding of what may be involved or the precariousness/selectiveness of the job market and how he might pay the rent or any other bills for that matter.

    The awkward situation about having to help him is that he needs assistance with his money management and that is not always viewed positively by him. We divide his allowance up to cover his transport costs to college, a personal allowance and an emergency support fund and still it's not appreciated. His personal allowance is generally gone within two days and you are constantly hounded for more money to support him through the rest of the month. He gets angry and apparently it’s everybody else’s fault! Despite him being on the high functioning end of the spectrum it's still difficult for him to understand and appreciate that there are other members of the family that have needs and that there isn't a money tree growing in the garden which is constantly in flower.

    To her credit, his girlfriend rebukes him when he's being unreasonable toward his family, however his obsessive behaviour towards her, means that she is now generally the focus of an allowance that is meant to specifically support his needs.

    The struggles he encounters just to get through his day are immense and leave a wake of exhaustion following his many meltdowns. Frankly, it would take the patience of a saint to put up with his level of anxiety and emotional immaturity. Yet we battle on wearily and there are regularly times where I just have to stand back.

    I think the point that I’m making here is that there are some situations that no matter how glaringly obvious they are, sufferers will not necessarily get it. Not immediately at least. For some it may take many years, for others it will allude them completely.

    For me history is repeating itself. My own brothers inability to manage money and his anger toward everyone else for his learning difficulties, brought my mother to an early grave. LITTERALLY! She had a stroke and died following one of his meltdowns and he still doesn’t appreciate what he put her through!

    Like you, I Struggle daily, but there comes a time when you have to accept that their perception of a situation isn’t always right, but no one is to blame.

    Perhaps they are angry and fearful. Perhaps they are at odds with themselves and just want to be accepted by everyone else as’ Normal’ whatever that means. You could expend days, months or years trying to fathom it and still not come up with a reason.

    In your heart and mind, if you know that you did your very best thats all you could do. You cannot reproach yourself.

    As hard as it sounds you need to let it go. It could make you ill or worse. If he’s meant to understand he will, but it will be in his time.

    I hope my post doesn’t cause you to despair, hopefully the moral of our sorry tale will prevent you stressing so much it makes you ill. As mothers we give, but appreciation for the sacrifices we make, is never a given.

    My heart goes out to you, I have every sympathy with your plight. A plight that many of us with both an Apsie or NT in the family, share. Take care.

    Coogy

Reply
  • Hello Mumofmany,

     I too have a son with Aspergers who's struggling with a very difficult transition and much of what you mention sounds very familiar. On the flip side, I believe I am the undiagnosed Apsie of the family, given my own severe struggles through life and the diagnosis and struggles of my immediate siblings.

    For my own son, he struggles to manage money and has no concept of budgeting, so getting him to accept or recognize how the world works in terms of rent and commitments is non-existent. He is also impulsive and this can cause him and others, a great deal of angst as he tries to manage his everyday life.

    Unlike his older brother who also has a diagnosis of Aspergers, he has struggled to come to terms with it and this is compounded by his severe dyslexia as he is heavily reliant on his family to read texts and to help him comply with the rules that most of us have to abide by in everyday life. He seems constantly angry and frankly fearful, so like you we make adjustments, but at times he can be truely hurtful.

    Unlike your son, our sons job prospects are hampered by the severity of his needs, but his difficulties in finding and using tools to overcome those disabilities also exacerbate the situation.

    Fundamentally he's a good kid, he's never been in trouble, but his obsessive behaviour and impulsive reactions make him an easy target for being taken advantage of, or misunderstood. His failure to see the ill intent of others has left him penniless on more than a few occasions and for a parent to witness this is heartbreaking.

    He too wants to move in with a girlfriend, however, he has no understanding of what may be involved or the precariousness/selectiveness of the job market and how he might pay the rent or any other bills for that matter.

    The awkward situation about having to help him is that he needs assistance with his money management and that is not always viewed positively by him. We divide his allowance up to cover his transport costs to college, a personal allowance and an emergency support fund and still it's not appreciated. His personal allowance is generally gone within two days and you are constantly hounded for more money to support him through the rest of the month. He gets angry and apparently it’s everybody else’s fault! Despite him being on the high functioning end of the spectrum it's still difficult for him to understand and appreciate that there are other members of the family that have needs and that there isn't a money tree growing in the garden which is constantly in flower.

    To her credit, his girlfriend rebukes him when he's being unreasonable toward his family, however his obsessive behaviour towards her, means that she is now generally the focus of an allowance that is meant to specifically support his needs.

    The struggles he encounters just to get through his day are immense and leave a wake of exhaustion following his many meltdowns. Frankly, it would take the patience of a saint to put up with his level of anxiety and emotional immaturity. Yet we battle on wearily and there are regularly times where I just have to stand back.

    I think the point that I’m making here is that there are some situations that no matter how glaringly obvious they are, sufferers will not necessarily get it. Not immediately at least. For some it may take many years, for others it will allude them completely.

    For me history is repeating itself. My own brothers inability to manage money and his anger toward everyone else for his learning difficulties, brought my mother to an early grave. LITTERALLY! She had a stroke and died following one of his meltdowns and he still doesn’t appreciate what he put her through!

    Like you, I Struggle daily, but there comes a time when you have to accept that their perception of a situation isn’t always right, but no one is to blame.

    Perhaps they are angry and fearful. Perhaps they are at odds with themselves and just want to be accepted by everyone else as’ Normal’ whatever that means. You could expend days, months or years trying to fathom it and still not come up with a reason.

    In your heart and mind, if you know that you did your very best thats all you could do. You cannot reproach yourself.

    As hard as it sounds you need to let it go. It could make you ill or worse. If he’s meant to understand he will, but it will be in his time.

    I hope my post doesn’t cause you to despair, hopefully the moral of our sorry tale will prevent you stressing so much it makes you ill. As mothers we give, but appreciation for the sacrifices we make, is never a given.

    My heart goes out to you, I have every sympathy with your plight. A plight that many of us with both an Apsie or NT in the family, share. Take care.

    Coogy

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