Daughter 17, getting a bit desperate.

She was diagnosed very late at 16. Crashed out of A levels 5 months later. She sees an NHS psychologist frequently. She’s in burnout.

After 8 months of fighting we’ve got an EHCP. She’s refusing to engage with any of it. Won’t discuss it. Won’t discuss anything, she never has, it’s always been a struggle. She just wants to stay in her room or hang out with her parents. She has no friends. Doesn’t do social media. We’ve tried fluoxetine but it made her exhausted. Melatonin did nothing either. We can’t afford to pay privately anymore, and please don’t suggest  CAMHS. It’s an 18 month wait list, and they were useless anyway.

She wants to go to university. I don’t know how she’ll integrate. She wants to do A levels at home, but we want her to go to a HF ASD school. She’s refusing to look round or talk about it.

Shes becoming more and more withdrawn and bad tempered. Her sleep is rubbish. She sleeps from about 3am until 2pm. Any attempts to change this are met with refusal.

Just lately l feel so angry I’m struggling to speak to her. She was a friendly chatty child. I know this was masking, but she’s fallen so far l feel so lost, bewildered and depressed, we’ve got a the help but she just won’t engage.

Parents
  • Hello, my son is 17 (diagnosed a year ago) and sounds very similar. At the moment he’s in year 12 but only just hanging in doing his A levels I wouldn’t be surprised if he drops out. Experiencing severe burnout. I haven’t been able to get him out of the house even for a walk for 2 solid weeks. No friends at all but used to be chatty and popular when he was younger. 
    it’s so hard. 
    Just wanted to say that you’re not alone. 

  • My son coming up to 24 and hasn't left house in ten yrs since he went into a depression after being diagnosed at 18 ..he has no friends etc..its real tough I know.

  • sounds similar to me, i didnt do anything after leaving school at 16, then stayed in my parents not doing anything or going out... around age 24 i took up martial arts which may have been a catalyst for self improvement and certainly more health as i went from like a underweight 7 stone to a more normal 9.5 stone in muscle growth. although it takes time still, i got my life together and normalised in my 30s so even when you get on the path to betterment it will still take another 10 years after you start to try to get better.

Reply
  • sounds similar to me, i didnt do anything after leaving school at 16, then stayed in my parents not doing anything or going out... around age 24 i took up martial arts which may have been a catalyst for self improvement and certainly more health as i went from like a underweight 7 stone to a more normal 9.5 stone in muscle growth. although it takes time still, i got my life together and normalised in my 30s so even when you get on the path to betterment it will still take another 10 years after you start to try to get better.

Children
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