Advice if possible please

My child is at Autistic unit in a mainstream school, the aim is to integrate the children into the mainstream and move them out of the unit. I’ve fought each time it’s been discussed and managed my child to continue full time in the unit. School are at a stage where they agree that it wouldn’t be the best decision for him to be in the mainstream at the moment but they can’t keep him full time in the unit for the remainder of primary years. All of the children in his class spend time in mainstream. So his week isn’t predictable and more children join the class as others move in mainstream full time. There has been so many days my sons is in meltdown and I can’t get him in the car, resulting in him missing days at school. He’s carried into school each day by myself or a teacher.

There are fully specialists schools in our area they have specialist staff. The classes would have the same children daily and the focus isn’t entirely on the curriculum and they focus on sensory needs also. A lot of the children are non verbal or have physical disabilities.

My child has got language but doesn’t speak in sentences. He’s able to answer simple questions but teachers and myself often wonder if he’s understanding the meaning of the question. He will answer a question with things that happened in the past. He mimicks others and has echolia. School have said that they know he is masking and try to support him with that. They are not good at supporting toilet training and this is something we struggle with at home too. He also does not eat when he’s at school. He’s very sad before & after school and says he doesn’t want to school, school is not good but he isn’t able to elaborate on that further due to his lack of language. He struggles with the other children and has 1 person who he calls his friend but when we have met this child outwith school my son is very anxious around him and wants to leave. 

I have mentioned the specialist school to my sons teacher who says my son should continue to work on his verbal communication where he currently is, as at the specialist school there is non verbal children and physically disabled children and my son wouldn’t have the level of interaction with other children and it’s best to continue to progress his language. 

Does anyone have any advice? I am really stuck on what to do. I think there is so much focus on speaking that every other need my child has  almost doesn’t seem important to the school. 

Parents
  • Has anyone tried non-speech based methods of communication with your child? Some autistic adults with little or no ability to speak use electronic devices or sign language to communicate. It seems to me that your son's school are rather fixated on the spoken word and on integrating children into the mainstream, rather than finding ways in which your son can communicate effectively. It is evident that your son dislikes his present school, perhaps in part due to having ever-changing classmates - change can be very distressing for autistics. As far as I can see, your son appears not to be benefitting much from his present school's regime.

  • They focus of the unit is primarily on speech and socialising with peers. He uses pecs in school for his time table, he uses a now and next board to break down his day and pecs to help him locate things in class and he uses language but the teacher has said he has found it difficult to pick apart the meaning of what he is saying at times. 

    Im not sure how to introduce an electronic device or if that is something he would like as at home he associates pecs with school and I use pictures to show him what/where we are going, doing, eating etc.

    Im not even sure if school would support him to use that. My son can say a wide variety of words but putting all those words together isn’t something he can do yet and sometimes will just agree with you or say the word “nothing” as he doesn’t want to keep the conversation going as he finds the interaction uncomfortable or to demanding or pointless well that’s what I read from that. 

    It’s hard to not feel incredibly judged by educational staff as I’ve requested the level of socialising is scaled back and schools response was he seems to enjoy having more children around especially at PE and group time. I said I think it may appear like that but what I see of him more able to hide behind the bigger personalities during those times and there’s not alot of focus directly on him. They said that could be true also. 

    I just wonder if he would be better suited at a specialist school but then he wouldn’t be around the same amount of verbal children. It wouldn’t be easy to get into the specialist school it would be a battle and there no guarantee he would get a place. 

    I just feel there is so much time for language and socialisation in the future I just want him to go to school and be comfortable and supported. Not overstimulated and stressed every day.

  • school say it’s healthy to have a bit of stress and be pushed but it’s not healthy for everyone to be in that environment daily. 

  • Do you think if you had a fully specialist school you would have been more supported and have less trauma? 

    Probably, but children with less overtly recognisable autism were not even recognised when I was a child. 'Asperger's-like' autism was only really addressed in educational settings from the mid 1990s onward. My selective mutism was ignored after my teacher learned that I spoke in an age-appropriate way at home. However, though school was traumatic for me for some of the time, it did eventually make me more able to socialise with larger groups of people, in a 'sink or swim' manner. 

Reply
  • Do you think if you had a fully specialist school you would have been more supported and have less trauma? 

    Probably, but children with less overtly recognisable autism were not even recognised when I was a child. 'Asperger's-like' autism was only really addressed in educational settings from the mid 1990s onward. My selective mutism was ignored after my teacher learned that I spoke in an age-appropriate way at home. However, though school was traumatic for me for some of the time, it did eventually make me more able to socialise with larger groups of people, in a 'sink or swim' manner. 

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