Worried about my son

I’m hoping someone here can help me regarding my son. His name is Matthew and he’s 26. Matthew has autism, he was diagnosed aged 10 and since then he’s never really grown up. He still plays with toys and loves to do imaginary play, sometimes on his own and sometimes with me and his mum. A while back he began to act differently, like other people where he adjusted his voice and his walk and actions. We found that he’s been doing this on his phone online. I discovered a lot of emails with different names, different genders which he says are his friends. I am worried now that this isn’t imaginary play and is becoming something else. I confess I don’t know much about autism but me and his mum have always supported Matthew through thick and thin. We support and encourage him in every way we can. We only want what’s best for him.

Regarding this I don’t know what to do to help Matthew. I’ve been online but it suggests so many potential things and half of them I don't think he's got anyway. It sounds a bit like split personality but I don't think so. I’m reluctant to seek professional help as professionals have dealt with Matthew before and in my opinion they made him worse. He doesn’t understand them and doesn’t really know what’s going on. As I said, he still like a child. Every time he saw them he had meltdowns, panic attacks and would refuse to leave the house sometimes for months after. I still think a lot of what Matt says and does is just him playing but I would like to ask here if anyone’s experienced this? If so could you tell me what’s up because I don’t know a lot about autism and if this is it or something else?

With kind regards and thanks, John.

Parents
  • Hi John, could you elaborate on what you mean by ‘play’ and ‘like a child’, if I may be so bold..?

  • He still plays with his toys and make believe games. Mentally I would say Matthew is more childlike like his mental age must be about 9. Sorry if I wasn't clear before.

  • So are you saying that his interests are the interests of nine year olds? Or are you saying he has the mental capacity of a nine year old?

    What was it, did you consider, was the reason his contact with professional was aggravating things..?

    What did you consider ‘split personality’ to mean in his case? Was it the change in his mood of stress levels in different environments? Say the home and in public?

  • Stress and mood are like waves on a heart-monitor, except they should go a certain-amount up and an equal-amount down. If Matt is physically preventing himself from being overtly-concerned in a situation, his low-mood will not be sad as normal, but instead it will go right down into depression without resistance. 

    The immediate-problem there is not with the willingness to validate depressive-thoughts and behaviours, the problem is with the disqualifying of positivity and the resistance to risk, Matt special-interests will help him justify-risk and feel-good.

    So perhaps whenever the next Comic-con is showing, you could take him there, or whenever the next NEET course becomes available, you could urge him to sign up. But any push you make for development must be proactive in nature, don’t be proactive in combating a depressive attack, be proactive with his interest..:)

  • Okie dokie, What I will say is that the main-issues that I feel I’m trying to define here, is the difference between Matts special-interests and Matts problems.

    The problems of autism as a root-cause is what I had mentioned above, regarding declaration and finding how best to introduce healthy-development. So it’s worth stating that, the way you expose Matt to new-experiences and regard what he has had difficulty with, is very-important. 

    The problems with most-professionals is the way they train, they mostly have trained with psychology and behaviours in mind, which doesn’t lend itself well to neurological-issues like autism. Autists can have psychological-issues, but they need to be considered from an autistic-perspective and proactively. Usually therapists take a session or two to gather insights, then they disregard those insights and push a standard model, and say that people need to ‘just do it’. This doesn’t work for autists, because you can’t wish neurodivergence away with a can-do attitude, as it leads to overload. Which they learn to fear and avoid.

    One of the ways that autistic-people deal with overload is to distract themselves with special-interests, though it can be a double-edged sword, because it can also reinforce safety-behaviours. Safety-behaviour needs modification, but you have to separate the behaviour from the special-interest, because the interest is what holds focus. So don’t throw the baby out with the bath water..:)

    People can be very distressed when observing a meltdown or overload, but a meltdown or overload after a long-day is the exhaust of stress, so the real focus of meltdown-reduction should be everything before the meltdown, not the meltdown itself.

    When a overload occurs you’re already too late, so don’t socially-interact with an autist and trigger-relapse by asking for explanations, just reassure them and have minimal social interaction, at that point special-interest is your friend.  
    So I don’t believe that you should be shunning a special-interest. Once you know it you can use it, but to interact with Matt in a positive way, you’re going to have to do it through positive-form and proactively. When he hears you discuss his special-interest in a derogatory way, he will think that you think it’s bad, or you’re being evasive.

    Matt being very-different in different places is a clear reflection of the stress he is under, whilst outside, if you felt that bad when you were doing something, you’d likely what to say in too. So I’d say that you should focus your energy on averting the stress, where Matt is masking most, I don’t think you should see the badness in the place where he feels safe.

Reply
  • Okie dokie, What I will say is that the main-issues that I feel I’m trying to define here, is the difference between Matts special-interests and Matts problems.

    The problems of autism as a root-cause is what I had mentioned above, regarding declaration and finding how best to introduce healthy-development. So it’s worth stating that, the way you expose Matt to new-experiences and regard what he has had difficulty with, is very-important. 

    The problems with most-professionals is the way they train, they mostly have trained with psychology and behaviours in mind, which doesn’t lend itself well to neurological-issues like autism. Autists can have psychological-issues, but they need to be considered from an autistic-perspective and proactively. Usually therapists take a session or two to gather insights, then they disregard those insights and push a standard model, and say that people need to ‘just do it’. This doesn’t work for autists, because you can’t wish neurodivergence away with a can-do attitude, as it leads to overload. Which they learn to fear and avoid.

    One of the ways that autistic-people deal with overload is to distract themselves with special-interests, though it can be a double-edged sword, because it can also reinforce safety-behaviours. Safety-behaviour needs modification, but you have to separate the behaviour from the special-interest, because the interest is what holds focus. So don’t throw the baby out with the bath water..:)

    People can be very distressed when observing a meltdown or overload, but a meltdown or overload after a long-day is the exhaust of stress, so the real focus of meltdown-reduction should be everything before the meltdown, not the meltdown itself.

    When a overload occurs you’re already too late, so don’t socially-interact with an autist and trigger-relapse by asking for explanations, just reassure them and have minimal social interaction, at that point special-interest is your friend.  
    So I don’t believe that you should be shunning a special-interest. Once you know it you can use it, but to interact with Matt in a positive way, you’re going to have to do it through positive-form and proactively. When he hears you discuss his special-interest in a derogatory way, he will think that you think it’s bad, or you’re being evasive.

    Matt being very-different in different places is a clear reflection of the stress he is under, whilst outside, if you felt that bad when you were doing something, you’d likely what to say in too. So I’d say that you should focus your energy on averting the stress, where Matt is masking most, I don’t think you should see the badness in the place where he feels safe.

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