Lack of understanding from closest family

My 9 year old has recently been diagnosed with ASD after having been assumed to have ADHD from a couple of years ago. He has always been neuro divergent and while my parents have often shown a lack of understanding, expecting him simply to "behave", I thought the diagnosis would lead them to change their stance.

The opposite has been the case. We have felt that they continue to be judgmental, accuse him of being "rude" because he is a fussy or sloppy eater and expect me to use harsh discipline for all his tantrums. Even when I told them about his condition they were dismissive. They don't seem to understand it and being with them I feel he is not in a nurturing environment. 

We live in Spain and so returning to the UK sometimes notice a culture shock. In Spain there is less expectation on kids to just do what they are told, smile when they are spoken to and say please and thank you for everything. Over there if I insist he does it, people just shrug it off and say, "let him be". They acknowledge his strengths and encourage him to progress. However over here we feel he is constantly being observed, criticised and of course we, as parents, feel bad, as if they are judging our own parenting skills.

Is this something other people have experienced and can they offer any advice on how to gain greater acceptance or at least understanding of his condition among those closest to us? Thanks.

Parents
  • We've been experiencing similar with Grandparents to our 13 year old daughter, recently diagnosed as autistic. I think there is simply a huge lack of understanding, or even willingness to believe in autism. It's incredibly frustrating! I also thought that with a diagnosis, we'd get more support and understanding, but have been met with complete unwillingness to accept that the diagnosis is valid. Our main problem is social anxiety and two of the grandparents just don't seem to be able to compute that this is a thing and keep making completely inappropriate suggestions for how we should push her harder to socialise, that it's time for some more 'strong arm' parenting to ensure she doesn't miss vital life lessons (vital to who I wonder?!). And like you, suggestions that we can't let her get away with her preferred behaviour because the adult world doesn't make allowances for people who don't want to socialise at a 'normal' level (says who?!).

    Anyway, I'm not sure I've got a lot of advice for dealing with this, but can definitely empathise! I've found it really helpful to just keep recentring myself, reminding myself that I'm doing the right thing by allowing my daughter to have the space to honour her feelings about social situations. It's not like she's always going to find these things impossible, it's just that she needs more time adjusting because her really high sensitivity makes things so much more intense than they are for neuro typicals. Her direct way of speaking means she often sounds rude, but again, she will learn to speak with a gentler tone given time, but is still a child, so can't be expected to get it right straight away. They're just kids being themselves.

    I do feel as though our kids need protecting from people who see them as being naughty. I'm torn about the best way to talk to them about this though. I've always said that Grandma is old fashioned and her opinions aren't worth paying attention to, but my daughter loves her Grandma and really finds it hard not to take her opinions seriously. She's found it quite hurtful to hear some of it. Now she's getting older, I just try and keep an open dialogue going with her, try and be really honest about what I think, without insulting her Grandma - just say that she's ill informed and holding outdated opinions, through no fault of her own. She means well, but doesn't understand. What I find harder is how angry it makes me feel, how condescending her view points are, how insulting she is towards us as parents. Some days I can't bear to be anywhere near her. It takes me quite a while to shake off the feeling of being judged and talked down to when I work so hard to try and do the right thing for my daughter. It's certainly a challenge. I don't know if there's any way to win them over and maybe this is the wrong goal to aim for. These days I'm just making it clear what my parenting approach is and I'm trying to care less about whether that meets approval or not.

Reply
  • We've been experiencing similar with Grandparents to our 13 year old daughter, recently diagnosed as autistic. I think there is simply a huge lack of understanding, or even willingness to believe in autism. It's incredibly frustrating! I also thought that with a diagnosis, we'd get more support and understanding, but have been met with complete unwillingness to accept that the diagnosis is valid. Our main problem is social anxiety and two of the grandparents just don't seem to be able to compute that this is a thing and keep making completely inappropriate suggestions for how we should push her harder to socialise, that it's time for some more 'strong arm' parenting to ensure she doesn't miss vital life lessons (vital to who I wonder?!). And like you, suggestions that we can't let her get away with her preferred behaviour because the adult world doesn't make allowances for people who don't want to socialise at a 'normal' level (says who?!).

    Anyway, I'm not sure I've got a lot of advice for dealing with this, but can definitely empathise! I've found it really helpful to just keep recentring myself, reminding myself that I'm doing the right thing by allowing my daughter to have the space to honour her feelings about social situations. It's not like she's always going to find these things impossible, it's just that she needs more time adjusting because her really high sensitivity makes things so much more intense than they are for neuro typicals. Her direct way of speaking means she often sounds rude, but again, she will learn to speak with a gentler tone given time, but is still a child, so can't be expected to get it right straight away. They're just kids being themselves.

    I do feel as though our kids need protecting from people who see them as being naughty. I'm torn about the best way to talk to them about this though. I've always said that Grandma is old fashioned and her opinions aren't worth paying attention to, but my daughter loves her Grandma and really finds it hard not to take her opinions seriously. She's found it quite hurtful to hear some of it. Now she's getting older, I just try and keep an open dialogue going with her, try and be really honest about what I think, without insulting her Grandma - just say that she's ill informed and holding outdated opinions, through no fault of her own. She means well, but doesn't understand. What I find harder is how angry it makes me feel, how condescending her view points are, how insulting she is towards us as parents. Some days I can't bear to be anywhere near her. It takes me quite a while to shake off the feeling of being judged and talked down to when I work so hard to try and do the right thing for my daughter. It's certainly a challenge. I don't know if there's any way to win them over and maybe this is the wrong goal to aim for. These days I'm just making it clear what my parenting approach is and I'm trying to care less about whether that meets approval or not.

Children
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