Lack of understanding from closest family

My 9 year old has recently been diagnosed with ASD after having been assumed to have ADHD from a couple of years ago. He has always been neuro divergent and while my parents have often shown a lack of understanding, expecting him simply to "behave", I thought the diagnosis would lead them to change their stance.

The opposite has been the case. We have felt that they continue to be judgmental, accuse him of being "rude" because he is a fussy or sloppy eater and expect me to use harsh discipline for all his tantrums. Even when I told them about his condition they were dismissive. They don't seem to understand it and being with them I feel he is not in a nurturing environment. 

We live in Spain and so returning to the UK sometimes notice a culture shock. In Spain there is less expectation on kids to just do what they are told, smile when they are spoken to and say please and thank you for everything. Over there if I insist he does it, people just shrug it off and say, "let him be". They acknowledge his strengths and encourage him to progress. However over here we feel he is constantly being observed, criticised and of course we, as parents, feel bad, as if they are judging our own parenting skills.

Is this something other people have experienced and can they offer any advice on how to gain greater acceptance or at least understanding of his condition among those closest to us? Thanks.

Parents
  • I’m so sorry that you and your child are experiencing this from your parents. It’s not good enough. Your parents could have a very negative impact on your son if he picks up on their judgemental attitude to him (and by extension to you). 
    I think you need to be polite but firm with your parents.

    In a friendly way say to them that you’d like to find a good time for them when you can all sit down and have a proper chat about your son’s diagnosis and his needs. Make it known to them that autism is legally defined as a disability. It is accepted as such in law - it’s not just some vague concept that doesn’t mean anything. Your son has needs that many other children don’t have, and if they are not met this can have a very detrimental effect on his ability to thrive and be happy. Presumably your parents love their grandchild and want to do what’s best for him, so in a friendly way  explain to them how they can do that. Explain for example how autism impacts on your son when it comes to food, and how they need to be patient and understanding about that. Maybe buy them a book about autism.

    But also make it clear that your son has a right to be around supportive family members, and that an overly judgemental and critical attitude towards him will harm his self esteem and development. It will also make him unhappy, and surely your parents don’t want to make him unhappy? 
    If no progress can be made though I would restrict the amount of time your son spends with them, because he deserves better than that from people who are meant to be loving and supportive. Good luck! 

Reply
  • I’m so sorry that you and your child are experiencing this from your parents. It’s not good enough. Your parents could have a very negative impact on your son if he picks up on their judgemental attitude to him (and by extension to you). 
    I think you need to be polite but firm with your parents.

    In a friendly way say to them that you’d like to find a good time for them when you can all sit down and have a proper chat about your son’s diagnosis and his needs. Make it known to them that autism is legally defined as a disability. It is accepted as such in law - it’s not just some vague concept that doesn’t mean anything. Your son has needs that many other children don’t have, and if they are not met this can have a very detrimental effect on his ability to thrive and be happy. Presumably your parents love their grandchild and want to do what’s best for him, so in a friendly way  explain to them how they can do that. Explain for example how autism impacts on your son when it comes to food, and how they need to be patient and understanding about that. Maybe buy them a book about autism.

    But also make it clear that your son has a right to be around supportive family members, and that an overly judgemental and critical attitude towards him will harm his self esteem and development. It will also make him unhappy, and surely your parents don’t want to make him unhappy? 
    If no progress can be made though I would restrict the amount of time your son spends with them, because he deserves better than that from people who are meant to be loving and supportive. Good luck! 

Children