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Please help

jaybee

Hi, My son is nineteen and has never been diagnosed with autism. i am in my heart and mind 100 per cent certain that he his autistic.  Is there anywhere my husband and I can go to get help with coping as it is tearing our lives apart and we constantly feel we are letting our son down which leads to guilt and a whole host of issues!!! our lives cant continue as they are i feel divorce in on the cards as we just csn not cope any more. we are desperate for help for us to try and help him.. does any one have any suggestions? thnk you

Parents

  • Autistic has a finality about it, and affects what you can do, and still has stigma (as the professionals have let us down). For one thing it is written down in books how we think and do things - it takes away the notion of individual personality. Also the term autistic is used in a derogatory fashion by young people.

    I can understand young people not wanting to admit it might appy to them. For parents it might seem the answer, but I think you need to see it from their perspective.

    There are a few books out there written by young people about their experience (mostly atypical though Luke Jackson, Marc Fleisher, Daniel Tammet), but too few for that to be much help or comfort. There is a grievous lack of role models across ASC but particularly so for young people. Most is by parents or professionals.

    I keep saying it, probably to no avail, but its the job of professionals to secure a proper understanding of this condition, from a point of view of day to day living, rather than just finding a cure. There are many aspects which could be alleviated if there was useful helpful information around.

    I'm not saying don't ask him or her to come to terms with it, but just give a thought to the negatives young people perceive about it.

Reply

  • Autistic has a finality about it, and affects what you can do, and still has stigma (as the professionals have let us down). For one thing it is written down in books how we think and do things - it takes away the notion of individual personality. Also the term autistic is used in a derogatory fashion by young people.

    I can understand young people not wanting to admit it might appy to them. For parents it might seem the answer, but I think you need to see it from their perspective.

    There are a few books out there written by young people about their experience (mostly atypical though Luke Jackson, Marc Fleisher, Daniel Tammet), but too few for that to be much help or comfort. There is a grievous lack of role models across ASC but particularly so for young people. Most is by parents or professionals.

    I keep saying it, probably to no avail, but its the job of professionals to secure a proper understanding of this condition, from a point of view of day to day living, rather than just finding a cure. There are many aspects which could be alleviated if there was useful helpful information around.

    I'm not saying don't ask him or her to come to terms with it, but just give a thought to the negatives young people perceive about it.

Children
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