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Please help

jaybee

Hi, My son is nineteen and has never been diagnosed with autism. i am in my heart and mind 100 per cent certain that he his autistic.  Is there anywhere my husband and I can go to get help with coping as it is tearing our lives apart and we constantly feel we are letting our son down which leads to guilt and a whole host of issues!!! our lives cant continue as they are i feel divorce in on the cards as we just csn not cope any more. we are desperate for help for us to try and help him.. does any one have any suggestions? thnk you

Parents

  • Hi,

    I think getting your son to admit he is autistic will be difficult. I am in the same position I have a 20, 21 in a few days son who I know is autistic, but he won't/can't accept the diagnosis. He also has ADHD so sees adult services, the pyschiatrist there asked him if he thought he had autism and he just insisted he didn't, then reluctantly agreed he had tendancies. When he was studying and was assessed for the disabled students allowance, the pyschologist doing the assessment after spending 2 days with him asked if he thought he was autistic, again he said no, but after some persuasion allowed autistic tendencies to be put in the report so he was entilted to a mentor to liase with his subject tutors. Sometimes he gets so angry and frustrated and can't cope with life, which makes it difficult for the whole family. I have 2 daughters one with autism diagnosed at age 5 and both with Ehlers Danlos Syndrome, so have physical difficulties. I know life can be physically and mentally exhausting. I don't know what support I can offer but it sometimes helps to know you are not the only one in your position.

Reply

  • Hi,

    I think getting your son to admit he is autistic will be difficult. I am in the same position I have a 20, 21 in a few days son who I know is autistic, but he won't/can't accept the diagnosis. He also has ADHD so sees adult services, the pyschiatrist there asked him if he thought he had autism and he just insisted he didn't, then reluctantly agreed he had tendancies. When he was studying and was assessed for the disabled students allowance, the pyschologist doing the assessment after spending 2 days with him asked if he thought he was autistic, again he said no, but after some persuasion allowed autistic tendencies to be put in the report so he was entilted to a mentor to liase with his subject tutors. Sometimes he gets so angry and frustrated and can't cope with life, which makes it difficult for the whole family. I have 2 daughters one with autism diagnosed at age 5 and both with Ehlers Danlos Syndrome, so have physical difficulties. I know life can be physically and mentally exhausting. I don't know what support I can offer but it sometimes helps to know you are not the only one in your position.

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