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Please help

jaybee

Hi, My son is nineteen and has never been diagnosed with autism. i am in my heart and mind 100 per cent certain that he his autistic.  Is there anywhere my husband and I can go to get help with coping as it is tearing our lives apart and we constantly feel we are letting our son down which leads to guilt and a whole host of issues!!! our lives cant continue as they are i feel divorce in on the cards as we just csn not cope any more. we are desperate for help for us to try and help him.. does any one have any suggestions? thnk you

Parents

  • It's highly unlikely you will get support without a diagnosis at his age.  If you go to your GP and request a referral for assessment for ASC, and don't let your GP fob you off!

    With a diagnosis, your son with be classified as having a legally recognised disability and this gives him access to a social services assessment of need as an adult, he can apply for DLA and you can apply for Carer's Allowance.  There may be services that the council provides that you can access too, and you can ask social services for an assessment of need for yourself as your son's carer too which will hopefully get you some respite.

    You can contact your local parent partnership organisation to ask for help too (although I'm not sure on their age limits of the child, it might be up to 25 you'd have to check):

    http://www.parentpartnership.org.uk/find-your-pps

Reply

  • It's highly unlikely you will get support without a diagnosis at his age.  If you go to your GP and request a referral for assessment for ASC, and don't let your GP fob you off!

    With a diagnosis, your son with be classified as having a legally recognised disability and this gives him access to a social services assessment of need as an adult, he can apply for DLA and you can apply for Carer's Allowance.  There may be services that the council provides that you can access too, and you can ask social services for an assessment of need for yourself as your son's carer too which will hopefully get you some respite.

    You can contact your local parent partnership organisation to ask for help too (although I'm not sure on their age limits of the child, it might be up to 25 you'd have to check):

    http://www.parentpartnership.org.uk/find-your-pps

Children
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