People staring and making comments

Hi my daughter has only recently been diagnosed with autism at 2 years old, 3 months ago. We did expect the diagnosis however it's a shock in a way and my partner and I are both still emotional about it. I took her out yesterday with her older brother who is 9 and we decided to go for a walk in our local arcade, she was having constant meltdowns as wanted to stand in the middle of the walkway jumping in muddy puddles that weren't there. I of course allowed this for a while but we were in the way of people so I said this way and she had her meltdown screaming "away mummy all done" it looked like she was petrified of me which she isn't I am very patient, kind and gentle with her but I felt like people were looking at me as if I was either not her mum or I was abusing her! She does look different in the way she speaks and acts however she is only 2 and people are always trying to calm her down or help in some way which makes things worse.  Then a passer by tutted and grumbled something unpleasant. It was the first negative reaction I've had from people and feel like getting her a tshirt which says I am autistic or having a sign on myself saying this. But also don't want to be labelling her if you know what I mean. Not sure how to deal with this so any advice would be helpful. Thanks.

Parents
  • To be honest it's not about labeling your child. Autism is an illness/disability. If someone with epilepsy collapses you say they have epilepsy that isn't labeling, it's having people understand they occasionally need help.

    I had this constantly whenever I took my son anywhere. He is hyper sensative to all 5 senses and this causes overloads more times then I care for. I once had a woman tut very loudly in Tescos at my son who was mid "freak out" (as he calls it) in the middle of the breakfast aisle. She even mouthed "brat" under her breath. I looked her dead in the eyes and said quite plainly "He's autistic love, what's your excuse for being an ignorant judgemental cow?" She instantly lowered her head muffled a "sorry" and shuffled off

    The only label parents should worry about are incorrect labels such as "brat" being given to our angels by other uneducated people. Make sure that people get the labels correct and understand that your child occasionally needs a little extra help and your doing your damnedest for her.

    Autism isn't understood by nearly enough people and only those who live on the spectrum (or care for those who do) can fully understand how crippling it can be sometimes. It's up to us to educate the masses and make sure our kids aren't unfairly judged in a world they'll already struggle to understand.

Reply
  • To be honest it's not about labeling your child. Autism is an illness/disability. If someone with epilepsy collapses you say they have epilepsy that isn't labeling, it's having people understand they occasionally need help.

    I had this constantly whenever I took my son anywhere. He is hyper sensative to all 5 senses and this causes overloads more times then I care for. I once had a woman tut very loudly in Tescos at my son who was mid "freak out" (as he calls it) in the middle of the breakfast aisle. She even mouthed "brat" under her breath. I looked her dead in the eyes and said quite plainly "He's autistic love, what's your excuse for being an ignorant judgemental cow?" She instantly lowered her head muffled a "sorry" and shuffled off

    The only label parents should worry about are incorrect labels such as "brat" being given to our angels by other uneducated people. Make sure that people get the labels correct and understand that your child occasionally needs a little extra help and your doing your damnedest for her.

    Autism isn't understood by nearly enough people and only those who live on the spectrum (or care for those who do) can fully understand how crippling it can be sometimes. It's up to us to educate the masses and make sure our kids aren't unfairly judged in a world they'll already struggle to understand.

Children
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