Looking for advice

HI 

Apologies if this is not the correct place to be looking for advice/support. My 2.5 year old son is currently non-verbal - he has said a few words ( when prompted) but lost them again shortly after, he shows no sign of understanding language. If I was to show him a biscuit he would be excited but I could say the word a million times over and he wouldn't ack me or turn/react. He doesn't know his own name yet and makes very little eye contact. I apologise if this sounds like i am making generalisations regarding autism, i am just trying to get an understanding of what we can do to support him.

He passed a hearing test a few months ago and we are on a waiting list for speech therapy but i feel it isnt just speech therapy as the understanding isn't there. He is a beautiful and happy little boy who is way ahead with his gross motor skills. He shakes his head quite rapidly at times and we have been told this could be stimming?  He reacts to music - so will dance and run from one room to another if he hears the theme tune of his favourite programme.

I just want to be sure I am giving my boy everything he needs, i have tried every possible route for support and just keep hitting a wall with " wait for your speech referral". I realised yesterday when talking to friends with children the same age about halloween that our little one has no idea - they had said there boys are excited and piclking outfits with them etc. . and it dawned on me that we are unable to have that communication with him ... he will love going to a party and knocking on doors to get chocolate but in general he will have no understanding of what this is ( i hope that makes sense) 

Just a parent desperate to make sure she is doing everything possible to support her little boy and would appreciate any guidance/advice/ words of wisdom :) . 

Parents
  • Hi, Well done for reaching out for advice to support your little boy. 

    i have a daughter who is now 4 and is non verbal autistic. I had the same concerns as yourself from a very young age and highlighted these. I was told “she is too young” sent for hearing test, professionals even questioned my mental health. But I knew she needed support. Especially younger rather than later.

    i continued to contact people involved in her care - like health visitor & eventually they agreed that she did display some signs of autism.

    she got diagnosed just before her 4th birthday. We have a private speech therapist as speech and language have stated they cant do anything because she is non verbal.

    My point of replying is to share my experience which is so similar to yours. If you feel he needs some support let professionals know that & be firm. Unfortunately it seems to be the only way anyone will listen when they are younger.

    good luck and i hope this helps 

Reply
  • Hi, Well done for reaching out for advice to support your little boy. 

    i have a daughter who is now 4 and is non verbal autistic. I had the same concerns as yourself from a very young age and highlighted these. I was told “she is too young” sent for hearing test, professionals even questioned my mental health. But I knew she needed support. Especially younger rather than later.

    i continued to contact people involved in her care - like health visitor & eventually they agreed that she did display some signs of autism.

    she got diagnosed just before her 4th birthday. We have a private speech therapist as speech and language have stated they cant do anything because she is non verbal.

    My point of replying is to share my experience which is so similar to yours. If you feel he needs some support let professionals know that & be firm. Unfortunately it seems to be the only way anyone will listen when they are younger.

    good luck and i hope this helps 

Children
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