Looking for advice

HI 

Apologies if this is not the correct place to be looking for advice/support. My 2.5 year old son is currently non-verbal - he has said a few words ( when prompted) but lost them again shortly after, he shows no sign of understanding language. If I was to show him a biscuit he would be excited but I could say the word a million times over and he wouldn't ack me or turn/react. He doesn't know his own name yet and makes very little eye contact. I apologise if this sounds like i am making generalisations regarding autism, i am just trying to get an understanding of what we can do to support him.

He passed a hearing test a few months ago and we are on a waiting list for speech therapy but i feel it isnt just speech therapy as the understanding isn't there. He is a beautiful and happy little boy who is way ahead with his gross motor skills. He shakes his head quite rapidly at times and we have been told this could be stimming?  He reacts to music - so will dance and run from one room to another if he hears the theme tune of his favourite programme.

I just want to be sure I am giving my boy everything he needs, i have tried every possible route for support and just keep hitting a wall with " wait for your speech referral". I realised yesterday when talking to friends with children the same age about halloween that our little one has no idea - they had said there boys are excited and piclking outfits with them etc. . and it dawned on me that we are unable to have that communication with him ... he will love going to a party and knocking on doors to get chocolate but in general he will have no understanding of what this is ( i hope that makes sense) 

Just a parent desperate to make sure she is doing everything possible to support her little boy and would appreciate any guidance/advice/ words of wisdom :) . 

Parents
  • Does he like spinning? Some of us were very keen on these physical forces. Perhaps he'd enjoy a sit n spin. 

    Keep a sharp look out for his interests, they may begin to tell you about his natural strengths. Even though he is quite young, he is communicating and expressing language in different ways. Just not with words. You mentioned music, which is actually an extremely intelligent way of communicating. I would see how far this might translate: from classical to ambient sonic electronic music. It's amazing how many composers are dyslexic. Will he sing? Or even learn a movement of sorts for expression (could be as simple as sign language or as clever as mime). See how he responds to Charlie Chaplin or classic theatre movement. There are so many artistic forms of expression. 

    Also, perhaps a music therapy would help with other things. Maybe even drum lessons. A drum kit involves quite a good deal of motor skills. But also this engagement with earths natural forces, which can be experienced when dancing and spinning or shaking. He sounds adventurous. Perhaps there are self-discipline martial arts for very young children you might look into. 

    The world and our biology in relation to it is a different kind of relating-with. Many times adults don't explore this until they have a breakdown around 40. Or realise adulthood is around the corner and go skydiving. Or worse - they don't listen to their body and the environment until they notice health issues. He may have an advantage here which could be worth helping him grow into. 

    Most children might not focus on learning these human forms early on. Imagine him in an early society where perhaps words weren't as interesting. Would he be developing just fine? Would he have mastered climbing a tree to collect it's fruit? Being human is so much more than pretending to be someone else and having too much sugar. :) He may have an ability to squeeze everything being alive has to offer.

    The only thing I might mind is that he will mirror how you interact with him onto others. So, it may become imperative to lead by example if he's progressing different with social understanding. Ideally if you are more respectful of him than a client, he will assume this is how we naturally treat others. Always ask if he'd like to take something from you and only assert yourself when danger is present (like politely collecting his hand to cross the street). Perhaps you're already like this. But it can be incredibly helpful for him going forward if you're in the habit of dropping to his level and asking for his engagement, allowing times for him to say yes or no when it doesn't matter. This will help him understand how to speak to others or be around others as he grows. 

Reply
  • Does he like spinning? Some of us were very keen on these physical forces. Perhaps he'd enjoy a sit n spin. 

    Keep a sharp look out for his interests, they may begin to tell you about his natural strengths. Even though he is quite young, he is communicating and expressing language in different ways. Just not with words. You mentioned music, which is actually an extremely intelligent way of communicating. I would see how far this might translate: from classical to ambient sonic electronic music. It's amazing how many composers are dyslexic. Will he sing? Or even learn a movement of sorts for expression (could be as simple as sign language or as clever as mime). See how he responds to Charlie Chaplin or classic theatre movement. There are so many artistic forms of expression. 

    Also, perhaps a music therapy would help with other things. Maybe even drum lessons. A drum kit involves quite a good deal of motor skills. But also this engagement with earths natural forces, which can be experienced when dancing and spinning or shaking. He sounds adventurous. Perhaps there are self-discipline martial arts for very young children you might look into. 

    The world and our biology in relation to it is a different kind of relating-with. Many times adults don't explore this until they have a breakdown around 40. Or realise adulthood is around the corner and go skydiving. Or worse - they don't listen to their body and the environment until they notice health issues. He may have an advantage here which could be worth helping him grow into. 

    Most children might not focus on learning these human forms early on. Imagine him in an early society where perhaps words weren't as interesting. Would he be developing just fine? Would he have mastered climbing a tree to collect it's fruit? Being human is so much more than pretending to be someone else and having too much sugar. :) He may have an ability to squeeze everything being alive has to offer.

    The only thing I might mind is that he will mirror how you interact with him onto others. So, it may become imperative to lead by example if he's progressing different with social understanding. Ideally if you are more respectful of him than a client, he will assume this is how we naturally treat others. Always ask if he'd like to take something from you and only assert yourself when danger is present (like politely collecting his hand to cross the street). Perhaps you're already like this. But it can be incredibly helpful for him going forward if you're in the habit of dropping to his level and asking for his engagement, allowing times for him to say yes or no when it doesn't matter. This will help him understand how to speak to others or be around others as he grows. 

Children
  • Hi, thank you for such a detailed reply. He does like to spin occasionally but its not something he does on a regular basis. We have been focusing on his interests and encouraging them - i think we made the mistake early on of trying to lead him to what would be the expected " norm" way of play and now we are fully embracing what he likes and wants to be doing. He likes things that connect - so a train set only if they link together - he loves books but only looking at them himself, he doesn't like to sit with us whilst we read. He loves cars and building with his lego but these are only for a matter of minutes - he is always searching for new things to do or different ways to play with his toys.

    I will certainly try the different music you have suggested with him - he will clap along to a nursery rhyme and will hum to a few tunes but he doesn't have the words to any as yet. He has said clap clap to a nursery rhyme a few times. Its really interesting reading your thought on music and i will explore that more with him.

    I also like the explanation you gave around what we focus on - He has always been so ahead with his motor skills and why not?  I spent so long worrying about the other aspects it took me some time to realise all these things he is doing.