Just been diagnosed.

Hello,

My 5 year old daughter was diagnosed on friday with aspergers it was only our second visit with the community pediatrician so i never expected to find out so soon i thought it would take longer. I knew in my heart that she would be diagnosed with aspergers yet i still feel shocked.

Parents
  • Oh yes, we have that, although we did not like my boy being in the room when we were talking to the Dr it did bring out in him the behaviour we get at home for them to see.

     In fact we took in a recording on my mobile phone of his 6 hour tantrums when he was younger. Asked them if him kicking,screamin, biting, hitting, head butting etc etc after two hours of calming down was normal? (Im glad we are not the only ones having meltdowns).  Funny enough the school and the Dr did not think so and so put us back in the system. unfortunatly now been waiting an age to get to the next stage.

    Any ideas how to push them along, unfortunatley lost father in law recently so last twenty months have just been coping with child and dealing with other issues so have not pushed with Dr, now doing that.

    Services do seem to be crap, however his school have been so much better. They have provided what they call protective behaviour teaching which he does during his school time. It has helped enormously to help him to see that he has people to turn to and talk to - it doesn;t have to be his parents which he seems to find more difficult to do.

    Don't know how well the school knows your daughter, I am dreading secondary as I know they are more hands off than hands on,  but might help give her an avenue to talk through her feelings and control her emotions (which is what we have major trouble with) and causes alot of the behaviour issues.

    I dont know if this helps, I'm not sure from what you have written if the school have acknowledged what your going through at home. My son only has problems at play times and change overs - social times and the rest of the time as you say is a fab student at school. In fact he loves the routine and struggles (and this reflects in his behaviour) when that routine changes. Although the school have experienced the behaviour issues with me getting him to school with full blown biting tantrums simply because his cannot understand the importance of complying with my routine at home?

    Sorry, hope I'm not going on but its nice others are going through the same - in a weird sort of way. I will have to see if my husband wants to chat on here sometime I know he finds it incredibly difficult to deal with as he is at work so much he doesn't get to see other parents who have similar problems and therefore only sees the angels walking loveingly with their very happy parents!! 

Reply
  • Oh yes, we have that, although we did not like my boy being in the room when we were talking to the Dr it did bring out in him the behaviour we get at home for them to see.

     In fact we took in a recording on my mobile phone of his 6 hour tantrums when he was younger. Asked them if him kicking,screamin, biting, hitting, head butting etc etc after two hours of calming down was normal? (Im glad we are not the only ones having meltdowns).  Funny enough the school and the Dr did not think so and so put us back in the system. unfortunatly now been waiting an age to get to the next stage.

    Any ideas how to push them along, unfortunatley lost father in law recently so last twenty months have just been coping with child and dealing with other issues so have not pushed with Dr, now doing that.

    Services do seem to be crap, however his school have been so much better. They have provided what they call protective behaviour teaching which he does during his school time. It has helped enormously to help him to see that he has people to turn to and talk to - it doesn;t have to be his parents which he seems to find more difficult to do.

    Don't know how well the school knows your daughter, I am dreading secondary as I know they are more hands off than hands on,  but might help give her an avenue to talk through her feelings and control her emotions (which is what we have major trouble with) and causes alot of the behaviour issues.

    I dont know if this helps, I'm not sure from what you have written if the school have acknowledged what your going through at home. My son only has problems at play times and change overs - social times and the rest of the time as you say is a fab student at school. In fact he loves the routine and struggles (and this reflects in his behaviour) when that routine changes. Although the school have experienced the behaviour issues with me getting him to school with full blown biting tantrums simply because his cannot understand the importance of complying with my routine at home?

    Sorry, hope I'm not going on but its nice others are going through the same - in a weird sort of way. I will have to see if my husband wants to chat on here sometime I know he finds it incredibly difficult to deal with as he is at work so much he doesn't get to see other parents who have similar problems and therefore only sees the angels walking loveingly with their very happy parents!! 

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