Undiagnosed at present new to all this, in referral process

hi 

I am a girl mummy who has noticed signs since my daughter was around 14 months old, she is now 2 and I have only just plucked up the courage to get the ball in motion to get her tested. 

I have put this in the back of my mind for months, she is a lockdown baby so I had just put it down to that with not having much contact with other people/children. I am scared don't get me wrong all this is so new to me even tho I have autism in my family and have worked in a s.e.n school previously. its difficult when you are the parent for sure. my early signs have been the hand over the ears which started around 8mnths, I shrugged it off saying ohhh its a faze shel grow out of it, certain foods she won't eat due to texture, and other things like running in circles, lining up toys on the tv stand, what's more heart breaking is I call her name no response or the words mummy have not been said either. she has regressed also with things she does like walk on tip toes when she had always walked flatfooted, the list goes on..... 

I now have the ball in motion to be referred but so scared social will get involved accuse me of being a bad mum and that I am far from. any hints or tips for the diagnosis journey would be eternally great fun. many thanks 

Parents
  • As others have said, you are already the perfect responsible parent, facing the possibility that your child may have some difficulties is the toughest challenge for anyone to admit, you wont be be judged as a bad parent, quite the opposite, by trusting your instincts and getting your daughter assessed is the best way to help her sooner rather than later. My son was assessed autistic and nonverbal at 3yrs. He is now nearly 20yrs, still nonverbal but able to make himself understood and over the years has much better understanding of receptive language.

    We've had ups and downs, laughter and tears like most people, and he achieved more than we thought possible, like riding a 2 wheel bike and going for rides with us, and swimming like a fish. If I could pass on one bit of advice that I wish I had done from the start, it would be to keep a detailed diary, from behaviour, mood, foods eaten, activities, changes to routine, time awake/asleep, even bowel movements. This helps to identify any possible causes in a change to behaviour, such as constipation, or overstimulation/too much sugar causing lack of sleep.

    Best of luck, always trust your instincts, you are the professional when it comes to your child.

  • I've been emailed saying what I've wrote above is inappropriate, am I missing something? Can someone shed some light on what I've said??

  • I didn't see anything inappropriate about your comment, I shouldn't worry? Shrug

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