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Undiagnosed at present new to all this, in referral process

girlmummy2020

hi 

I am a girl mummy who has noticed signs since my daughter was around 14 months old, she is now 2 and I have only just plucked up the courage to get the ball in motion to get her tested. 

I have put this in the back of my mind for months, she is a lockdown baby so I had just put it down to that with not having much contact with other people/children. I am scared don't get me wrong all this is so new to me even tho I have autism in my family and have worked in a s.e.n school previously. its difficult when you are the parent for sure. my early signs have been the hand over the ears which started around 8mnths, I shrugged it off saying ohhh its a faze shel grow out of it, certain foods she won't eat due to texture, and other things like running in circles, lining up toys on the tv stand, what's more heart breaking is I call her name no response or the words mummy have not been said either. she has regressed also with things she does like walk on tip toes when she had always walked flatfooted, the list goes on..... 

I now have the ball in motion to be referred but so scared social will get involved accuse me of being a bad mum and that I am far from. any hints or tips for the diagnosis journey would be eternally great fun. many thanks 

Parents

  • You sound like you are already doing a fantastic job as mum. You are aware of your child's behaviour and have realised that assessment will no doubt bring help and advice in the future for both you and your daughter. Our son has aspergers and we didn't get him assessed until he was in his late teens and it would have probably been better if we had had help earlier. Don't forget to enjoy all the lovely moments whilst your child is young. I remember my son doing lots of unusual things but which were really quite endearing. He brought his large toy car to the doll's tea party expecting it to be able to join in - I think his twin didn't seem to mind too much. He made up incredibly complicated games and wanted everyone to do exactly as he said. He never really did the same as other children around him but managed sometimes to play alongside others. I was always worried about being judged by others because my child was not doing anything conventional. I am still working on my own confidence and use CBT and ACT methods as well as meditation and mindfulness techniques to keep myself calm and to be as good a mum as I can be. It's hard being a parent and you sound like you are doing your best, being there for your daughter. The assessment process seems to take a long time as we have found. Good luck with everything.

  • in reply to Seal
    Seal said:
    He made up incredibly complicated games

    and I was making my 2 younger sisters play with me, :D but they were not complicated only complex

    I didn't like doll's eyes, one day around 5y.o. I did manage to get hold on my sisters dolls, and plucked their eyes out

    after mopping for a while my sisters were even more eager to play my games, but plcuking eyes did not have that in mind

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  • in reply to Seal
    Seal said:
    He made up incredibly complicated games

    and I was making my 2 younger sisters play with me, :D but they were not complicated only complex

    I didn't like doll's eyes, one day around 5y.o. I did manage to get hold on my sisters dolls, and plucked their eyes out

    after mopping for a while my sisters were even more eager to play my games, but plcuking eyes did not have that in mind

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