Undiagnosed at present new to all this, in referral process

hi 

I am a girl mummy who has noticed signs since my daughter was around 14 months old, she is now 2 and I have only just plucked up the courage to get the ball in motion to get her tested. 

I have put this in the back of my mind for months, she is a lockdown baby so I had just put it down to that with not having much contact with other people/children. I am scared don't get me wrong all this is so new to me even tho I have autism in my family and have worked in a s.e.n school previously. its difficult when you are the parent for sure. my early signs have been the hand over the ears which started around 8mnths, I shrugged it off saying ohhh its a faze shel grow out of it, certain foods she won't eat due to texture, and other things like running in circles, lining up toys on the tv stand, what's more heart breaking is I call her name no response or the words mummy have not been said either. she has regressed also with things she does like walk on tip toes when she had always walked flatfooted, the list goes on..... 

I now have the ball in motion to be referred but so scared social will get involved accuse me of being a bad mum and that I am far from. any hints or tips for the diagnosis journey would be eternally great fun. many thanks 

Parents
  • Tell them to go away and ask for someone else. If they do they aren’t doing their job properly. Nobody should ever be accused of being a bad parent if they are trying to get their child help (unless it’s for personal gain). I’m only 21 I got diagnosed when I was 17 from being pushed by my college. I wish my mum caught it early for me. it’s harder to get a diagnosis in girls due to masking as they get older might get other diagnosiss first (OCD ADHD ADD ect). They might drop it but keep pushing when she goes to school nursery pre school ask them to keep an eye out. Keep notes. Notes notes notes. When it comes to the actual assessment witch could take donkeys years (apparently the wait is 2 years at the moment) you could get brain block. Trust your gut. It’s always right when it comes to your child. Keep going mum you got this!! 

Reply
  • Tell them to go away and ask for someone else. If they do they aren’t doing their job properly. Nobody should ever be accused of being a bad parent if they are trying to get their child help (unless it’s for personal gain). I’m only 21 I got diagnosed when I was 17 from being pushed by my college. I wish my mum caught it early for me. it’s harder to get a diagnosis in girls due to masking as they get older might get other diagnosiss first (OCD ADHD ADD ect). They might drop it but keep pushing when she goes to school nursery pre school ask them to keep an eye out. Keep notes. Notes notes notes. When it comes to the actual assessment witch could take donkeys years (apparently the wait is 2 years at the moment) you could get brain block. Trust your gut. It’s always right when it comes to your child. Keep going mum you got this!! 

Children
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