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Struggle to cope with my autistic 6 year old on my own

Aimee

I have no family or friends to help me at all.

I had to give up my job to care for my son as he refuses to go to school and I can not find any childcare for him (I'm assuming this is because he's autistic although they don't admit that) 

He is extremely difficult to look after I can not leave the house with with as he's runs away and he lashes out. 

I also have a younger son and I feel terribly guilty my 4 year old has to live like this, we are prisoners in our home and have to endure day after day of screaming, hitting, kicking, spitting and smashing things up. Every day is stressful, we have no quality of life. We are miserable.

It often ends up with me totally overwhelmed and crying and shouting myself, and It breaks my heart to see how is effecting my youngest son. 

My husband works full time. I NEED him home with us.

Would we get any help/benefits if both me and my husband stay home to look after my autistic son. I know only 1 of us can claim carers allowance. 

Parents

  • Perhaps you could talk to a pediatrician about your son's behaviors and about his schooling. Education is really important for any child's future. They might be able to give you some resources. 

    I think your husband should keep his full-time job, since it'll provide basic necessities, rent, food. But I understand that it's hard to look after two young children, because while you're looking in one direction at one child, the other child might be running off and do something dangerous.

    I really think your 6 year old child should go to a school that supports his needs, and maybe with a pediatrician's help and some resources, you'll be able to find what would work best for your family. 

  • in reply to Hippopotomonstrosesquippedaliophobia

    I've told his pead I can't cope with his behavior and she just said its a phase but actually it's not. I'm so sick of telling people I need help. He goes to a specialist school. 

  • in reply to Aimee

    If he's in a specialist school, I rather think they should be doing more to help get him there and make life bearable for him there, otherwise how is he going to progress with anything in life.

    I'd also try finding out if there are any autism support groups in your area.  You might also try your GP and tell them, it's not that you are a bad parent or anything but you need some specialist advice on parenting an autistic kid, before you all collapse with exhaustion.  

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  • in reply to Aimee

    If he's in a specialist school, I rather think they should be doing more to help get him there and make life bearable for him there, otherwise how is he going to progress with anything in life.

    I'd also try finding out if there are any autism support groups in your area.  You might also try your GP and tell them, it's not that you are a bad parent or anything but you need some specialist advice on parenting an autistic kid, before you all collapse with exhaustion.  

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