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Struggle to cope with my autistic 6 year old on my own

Aimee

I have no family or friends to help me at all.

I had to give up my job to care for my son as he refuses to go to school and I can not find any childcare for him (I'm assuming this is because he's autistic although they don't admit that) 

He is extremely difficult to look after I can not leave the house with with as he's runs away and he lashes out. 

I also have a younger son and I feel terribly guilty my 4 year old has to live like this, we are prisoners in our home and have to endure day after day of screaming, hitting, kicking, spitting and smashing things up. Every day is stressful, we have no quality of life. We are miserable.

It often ends up with me totally overwhelmed and crying and shouting myself, and It breaks my heart to see how is effecting my youngest son. 

My husband works full time. I NEED him home with us.

Would we get any help/benefits if both me and my husband stay home to look after my autistic son. I know only 1 of us can claim carers allowance. 

Parents

  • If in doubt, can you find a community of Autistic Adults in your area? I hear about this often and wish there were teams of us in local communities who could make house calls - if nothing more than to help troubleshoot all the potential things which society deems perfectly normal, but might be sensory nightmares to autistic children. 

    It breaks my heart to hear stories like these. If I'd have known a few things different when my son was young which would've helped make his life easier, I would've made those changes. We didn't know know he was dyslexic. I didn't really think about left-handed scissors. I know it seems simple, but I was too young and didn't have help and was exhausted.

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  • If in doubt, can you find a community of Autistic Adults in your area? I hear about this often and wish there were teams of us in local communities who could make house calls - if nothing more than to help troubleshoot all the potential things which society deems perfectly normal, but might be sensory nightmares to autistic children. 

    It breaks my heart to hear stories like these. If I'd have known a few things different when my son was young which would've helped make his life easier, I would've made those changes. We didn't know know he was dyslexic. I didn't really think about left-handed scissors. I know it seems simple, but I was too young and didn't have help and was exhausted.

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