Urgent help please!

Thank you all for your feedback and help I will certainly look into these organisations. 

He is indeed in mainstream school. 

In regards to his assessment he will happily talk but most of the time it's made up stories or untrue facts etc. His hand gesture we do see more as fidgets over expression. 

Today I spoke to a clinician who actually suggested a private diagnosis may be the best route as to get a second opinion in our area would likely be unsuccessful as in our area another doctor won't be likely to undermind a previous doctor whom they work with. 

It's so stressful and exhausting we do love him, but it's getting to a point my wife and I may even split. 

We are trying to do a ehcp but it's very hard work! 

His senco, well she's terrible. She work 2 days a week for half a day each day. So we never manage to get a meeting ....

Today was a bit of a better day for him at school however the school still sent 5 children home today! 

Has any one done private diagnosis? What was the cost etc? 

If the school is illegally excluding  SEND kids on a regular basis this is definitely a matter for Ofsted. They will not usually investigate individual complaints, but as you say five kids are involved, this is clearly a matter of school organisation and policy  and within their remit:   contact.ofsted.gov.uk/online-complaints

Head Teachers  must  "  ... have an understanding of, and always act within, the statutory frameworks which set out their professional duties and responsibilities."  [Teachers' Standards, DfE 2013] 

The decision to "send a child home"  without following exclusion procedures is almost certainly unlawful and unethical. It is probably also premeditated discrimination on the basis of disability and unlawful under the Equality Act 2010.  My understanding is that, as the decision to exclude a  pupil is the prerogative of the Head Teacher, s/he has a personal responsibility for that decision under s.149 (the Public Sector Equality Duty)

Also relevant:   http://www.un.org/development/desa/disabilities/conference-of-states-parties-to-the-convention-on-the-rights-of-persons-with-disabilities-2.html   Article 7.1  (Disabled children to have same rights and freedoms as other children)    

The United Nations Convention on the Rights of the Child Art 2  (non-discrimination )

Head teachers are highly paid professionals who are appointed, not anointed, and if the governors and LEA don't hold them to account, then it is a matter for Ofsted, SENDIST and the professional regulator.

[ Disclaimer: I am not a lawyer and the above is a personal view only - you are advised to seek a qualified legal opinion in any particular case.]

PS - If your issue is with the LEA, after giving them a fair chance to respond, try involving your local councillor (in some cases it might be a County Councillor if education is a county responsibility) or MP.  This is a bit of a nuclear option, but there is nothing like a "member's enquiry" to focus the bureaucratic mind - usually the response has to be "cleared" through a senior manager, bringing unwanted attention onto the individuals involved.

In the same way, a solicitor's letter usually goes to the legal department and a senior manager has to draft a response.

Like laxatives, these measures will often remove unwanted blockages, but need to be used sparingly for maximum effect!

PS - If your issue is with the LEA, after giving them a fair chance to respond, try involving your local councillor (in some cases it might be a County Councillor if education is a county responsibility) or MP.  This is a bit of a nuclear option, but there is nothing like a "member's enquiry" to focus the bureaucratic mind - usually the response has to be "cleared" through a senior manager, bringing unwanted attention onto the individuals involved.

In the same way, a solicitor's letter usually goes to the legal department and a senior manager has to draft a response.

Like laxatives, these measures will often remove unwanted blockages, but need to be used sparingly for maximum effect!