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Urgent help please!

NAS80246

Long story so bear with me. 

I'm married with 3 kids. 

13 yo son

8 yo son 

4yo daughter. 

My wife and I are 100% our 8 yo son has autism and ADHD. 

We have done work with so many groups and charities such as addvance,  palms, desc, etc etc who have all said our son certainly fits into the autism "category" 

However on assessment with his paediatrics he didn't get his diagnosis due to being to vocal in conversation and showing to much emotion/ gesture with hands.

We are at our wits end as we have no support and can't deal with this alone. 

We are extremely close to splitting up now, he only goes to school for a few hours then comes home. The school call us all the time to collect him because they can't deal or control him with his meltdowns and fight or flight moments. 

My wife is shattered, I'm shattered. I'm trying to carry on with work but that's effecting everything. 

We don't know what to do next?! We need help! Rest bite or something? 

Our 4 yo daughter is scared of our 8 yo and his behaviour. We physically and emotionally get abuse from him but it seems everything we do, we either get discharged and what feels like a not our problem type response or pointed towards yet another group that tell us the same coping techniques and courses which we have already done!

Please someone help! 

We are close to breaking SleepyCry

Parents

  • Thank you all for your feedback and help I will certainly look into these organisations. 

    He is indeed in mainstream school. 

    In regards to his assessment he will happily talk but most of the time it's made up stories or untrue facts etc. His hand gesture we do see more as fidgets over expression. 

    Today I spoke to a clinician who actually suggested a private diagnosis may be the best route as to get a second opinion in our area would likely be unsuccessful as in our area another doctor won't be likely to undermind a previous doctor whom they work with. 

    It's so stressful and exhausting we do love him, but it's getting to a point my wife and I may even split. 

    We are trying to do a ehcp but it's very hard work! 

    His senco, well she's terrible. She work 2 days a week for half a day each day. So we never manage to get a meeting ....

    Today was a bit of a better day for him at school however the school still sent 5 children home today! 

    Has any one done private diagnosis? What was the cost etc? 

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