Unprepared

Three weeks ago we received a phone call from our 20 year old grandson declaring he was homeless. We responded by collecting him off the street and bringing him back to our home.

At the age of five he was removed from his mother, her partner and placed in the care of the local authority due to their heroin addiction. After short term placements he was placed in long term foster care with a stable and loving family. At a young age (primary school years) he was diagnosed with autism but remained in mainstream education. His behaviour has always been a challenge but manageable, that is until around his 15th birthday, when a change in social worker caused a rapid decline. The new social worker insisted that he was provided with experiences and freedoms in line with his peers despite displaying a maturity more akin to a 12 to 13 year old boy. Within months his experimenting with tobacco, alcohol, drugs and increased disruptive behaviour severely dented the relationship with his foster parents. In desperation the foster parents sought additional support but the response was to remove him from their care. The following three years are marked by several short term placements, each ending in a forced move. Prior to his 18th birthday his appointed PA helped him to return to his foster parents under a ‘staying put’ arrangement limited to two years with the intention to prepare him for the next stage of independent living. The past two years coincided with the Covid pandemic leading to the cancellation of a college course, lockdown restrictions and isolation from friends and us, his grandparents. His behaviour declined resulting in convictions for assault on police officers and theft, drunkenness, drug abuse, and a mental health breakdown leaving him with very low self-esteem and suicidal thoughts. He cannot deal with the assault on his senses with what is happening to him and is refusing to engage with any of the agencies offering help as he sees himself beyond help.

So here we are, a young man on the autistic spectrum totally unprepared to deal with the baggage he has acquired over his short life with totally unprepared grandparents in their mid-seventies.

Where do we go from here?

Parents
  • Hi there, Sorry to hear you are having a tough time currently. I hope some of these links might be useful to your situation:

    Individuals on the spectrum can often display behaviour that may be challenging. There will generally be a reason for this and it is important to try and understand the trigger for the behaviour when developing strategies. You may like to have a look at the following link for more information on behaviour and strategies: https://www.autism.org.uk/advice-and-guidance/topics/behaviour 

     You may be interested in seeking some professional support regarding the behaviour. You can search for professionals in your area we are aware of on the Autism Services Directory: https://www.autism.org.uk/directory 

     You might also like to take a look at The Challenging Behaviour Foundation website for further information and advice: https://www.challengingbehaviour.org.uk.  They also have an information and support service which you can contact by phone or email – details can be found here: https://www.challengingbehaviour.org.uk/for-family-carers/family-support-service/ 

    You may be interested in contacting a local National Autistic Society branch. Our branches offer support to local autistic people and their families. If you interesting in checking if there is a local branch near to you, please follow the link below: https://www.autism.org.uk/what-we-do/local-branches Our branches are volunteer-led, and as such every branch and group is different. Some are parent support groups, some provide support and information to autistic adults, while others have office premises and run their own a drop-in service. You will need to check with a branch directly for more information on whether they are able to provide a particular service that you are interested in.

    Hope something there is useful,

    SarahMod

Reply
  • Hi there, Sorry to hear you are having a tough time currently. I hope some of these links might be useful to your situation:

    Individuals on the spectrum can often display behaviour that may be challenging. There will generally be a reason for this and it is important to try and understand the trigger for the behaviour when developing strategies. You may like to have a look at the following link for more information on behaviour and strategies: https://www.autism.org.uk/advice-and-guidance/topics/behaviour 

     You may be interested in seeking some professional support regarding the behaviour. You can search for professionals in your area we are aware of on the Autism Services Directory: https://www.autism.org.uk/directory 

     You might also like to take a look at The Challenging Behaviour Foundation website for further information and advice: https://www.challengingbehaviour.org.uk.  They also have an information and support service which you can contact by phone or email – details can be found here: https://www.challengingbehaviour.org.uk/for-family-carers/family-support-service/ 

    You may be interested in contacting a local National Autistic Society branch. Our branches offer support to local autistic people and their families. If you interesting in checking if there is a local branch near to you, please follow the link below: https://www.autism.org.uk/what-we-do/local-branches Our branches are volunteer-led, and as such every branch and group is different. Some are parent support groups, some provide support and information to autistic adults, while others have office premises and run their own a drop-in service. You will need to check with a branch directly for more information on whether they are able to provide a particular service that you are interested in.

    Hope something there is useful,

    SarahMod

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