Experiences of Crisis Teams?

That is also a very serious concern for me.  I do, generally speaking, want to be here but all of this pushes me towards feeling differently.  I find it hard to see a way out without triggering the whole "unhelpful help" scenario. 

Yes.  For us they've proved to be worse than useless in that some of their interventions were actually damaging.  

I'm tempted, and have been for some time, to ask for a needs assessment, but there again I'd have to be very careful about what I revealed because I could easily bounce the whole family into a very much feared and unwanted "intervention" from social services.  And, at my carers' group, it seems the focus is on respite and various activities I don't want (I know how to look after myself and sort out my own self care) rather than the autism-friendly advice and guidance for family matters that impinge on every family member - quite badly and in numerous ways with which anyone would have difficulty coping.  

im always wary of being too honest and getting put in a mental health facility. although the thought of cutting myself or whatever dosent really appeal..  if i could click my fingers, i wouldnt be here. 

What can I say? All the MH service has done for me is damage me more. Crisis teams do nothing except totally screwball what you say and then do nothing. I will NEVER, EVER again reach out to them for help. If they can't help, they could at least stop hindering.

I have a private autism informed therapist now. He's great, but not everyone can afford to pay. I had to work out my problem was SPD because of autism for myself and pay for that assessment. 

Now that I've worked my backside off and paid a fortune to understand the problem, there is a perfect opportunity for GPs to help with a few very little reasonable adjustments - they are doing nothing.

I am screaming in the darkness, with the only so-called help actually at best nothing, or at worst dangerous.

I'm coming to understand the only help we have is eachother or what we can pay for. And we can't get PIP for that.

I can see myself working to the bone at a time I desperately need to retire, for the help I need until I collapse and just give up on life.

Problem I have is that need for an advocate is recognised, but no one will give me one. If I do get one the GP won't make it possible to see me with one because the only route past the receptionist to make an appointment is to ring at 8 - an advocate can't be on stand by all day just for me. And yet it's the GP who says I need one. I've needed a GP appointment for over a year and can't get one with an advocate present.

Upshot, I cannot access any health care at all. My only contact with them is by letter, and it takes months to get a one line reply.

The crisis team helped me once after I had a psychotic episode whilst on holiday with my ex. I had regular meetings with them in my house where they talked to me and helped by giving me resources, and I had a phone number to call at any time if I needed immediate help or support, which I used. They helped to calm me down and I still use some of the relaxation techniques I got from them now, three years later!

Too busy wiggling their Arses on TikTok. :) 

Crisis team are useless, Your better off contacting your local authority for a needs assessment and a healthcare plan being made which will provide you access to support worker and specialised services and advocate on your behalf to get the right help.

Alternatively you could contact your local autism partnership or autism charity and see if they are able to provide emergency therapy, advocacy or support.   

Sounds about right.  We bumped into constant delays due to staff absences for one reason or another. 

Yeah.  After my eventual diagnosis local mental health services did mention a couple of "useful organisations", being the NAS and the local North East Autism Society.  But so far neither have been able to offer us anything to help us to support an adult who won't engage (largely due to past experiences with services).  Plus of course, the leaflets all contained obvious stuff that was easily ascertainable through a quick internet search.  I found myself wondering why, since they knew we'd been struggling for years and years, they imagined I hadn't already had a look at these organisations.

It reminds me of the Crisis Team again.  We spent ages trying to cope, again searching all the time for helpful resources and support because our son was in a state and the GP insisted he had to come into the surgery himself and there was no outreach service (it later transpired that there was!) and when they suggested psychosis and we asked for more information to help, they just gave us a printout of a MIND leaflet! 

I might have expected too much again, but I thought they'd do an individual formulation based on case history, triggers and maintaining factors with suggestions for strategies on how to help.  I somehow imagined we were seeing experts with additional knowledge.  And even after the 3 1/2 years we still didn't get a proper formulation or any tailored help.  They really seemed to be one-size-fits-all buffoons.  :(    

My experience of NHS mental health crises teams, they gave me information leaflets and this website address.

My Key Worker in the Mental Health Unit has been off sick for over a month now, and the Worker covering for her can only deal with emergency cases. 

At least I have ones I can call, in the meantime. 

And that's a big part of the problem.  If I knew that I would either have done it myself or bought it in by now.  Plus we already know that appointments, admission or drugs won't help.  

Except...   except...   if I could find an experienced, well trained, neurodivergent expert specialising in family work and knowledgeable about promoting engagement in cases like ours, that might help.  Especially if they could refer on to other specialised autism services as needed.  But that's just a dream.  Sigh...

Generally though, some individualised plan based on compassion, expertise and experience is needed.  And more than that well, I'd have to be an expert myself to know.  

you have to know exactly what YOU think will help. They will only have , appointments , admission or drugs

Yes.  I think the issue is that this 100+ years is based on the external observations of a few scientists who chose to focus on young boys, most often those with learning disabilities too.  So for too many years, those who fell outside their narrow diagnostic criteria were missed.  Even now, the roots of this approach can be seen in their diagnostic criteria.  

It could all have been avoided by involving and actually listening to autistic people themselves.  

And, in the meantime, which might very well turn out to be the rest of our lives, we're stuck.  

Autism; its only be known and researched for about 100+ years, so still new to the NHS, and the Government 

It may be improving but slowly.

Hopefully somebody here is aware of something that I'm not.