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Experiences of Crisis Teams?

Jenny Butterfly

I really feel in crisis for quite a bit of the time these days.  However, asking for help for myself and being open and honest about our situation also brings with it the worrying possibility of unwanted "help" from services untrained in autism.

I'm thinking about the Crisis Team in particular, with which we've had some very disappointing and damaging experiences.  

Is there anything to ask or be aware of that might enable us to actually get something useful from them?  Any special autism-friendly service?

Otherwise what on earth do families do when they're in crisis but know this team cannot help?

Parents Reply Children
  • in reply to Robert124

    Yeah.  After my eventual diagnosis local mental health services did mention a couple of "useful organisations", being the NAS and the local North East Autism Society.  But so far neither have been able to offer us anything to help us to support an adult who won't engage (largely due to past experiences with services).  Plus of course, the leaflets all contained obvious stuff that was easily ascertainable through a quick internet search.  I found myself wondering why, since they knew we'd been struggling for years and years, they imagined I hadn't already had a look at these organisations.

    It reminds me of the Crisis Team again.  We spent ages trying to cope, again searching all the time for helpful resources and support because our son was in a state and the GP insisted he had to come into the surgery himself and there was no outreach service (it later transpired that there was!) and when they suggested psychosis and we asked for more information to help, they just gave us a printout of a MIND leaflet! 

    I might have expected too much again, but I thought they'd do an individual formulation based on case history, triggers and maintaining factors with suggestions for strategies on how to help.  I somehow imagined we were seeing experts with additional knowledge.  And even after the 3 1/2 years we still didn't get a proper formulation or any tailored help.  They really seemed to be one-size-fits-all buffoons.  :(