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Experiences of Crisis Teams?

Jenny Butterfly

I really feel in crisis for quite a bit of the time these days.  However, asking for help for myself and being open and honest about our situation also brings with it the worrying possibility of unwanted "help" from services untrained in autism.

I'm thinking about the Crisis Team in particular, with which we've had some very disappointing and damaging experiences.  

Is there anything to ask or be aware of that might enable us to actually get something useful from them?  Any special autism-friendly service?

Otherwise what on earth do families do when they're in crisis but know this team cannot help?

Parents Reply Children
  • in reply to Autimator

    Yes.  I think the issue is that this 100+ years is based on the external observations of a few scientists who chose to focus on young boys, most often those with learning disabilities too.  So for too many years, those who fell outside their narrow diagnostic criteria were missed.  Even now, the roots of this approach can be seen in their diagnostic criteria.  

    It could all have been avoided by involving and actually listening to autistic people themselves.  

    And, in the meantime, which might very well turn out to be the rest of our lives, we're stuck.