Self regulation

I'm finalising my daughters EHCP at the moment and after reading it, I have a better understanding of her needs. One big issue she has is her self regulation skills leading to dangerous and disruptive behaviours whilst at school. 

Her behaviours have escalated quickly since the summer term leading to many serious incidents, such as harm to herself and others, unsafe behaviour in the community, disruption of the school, refusal to engage in learning and absconding. She will hit out at times when distressed, uncertainty, when her verbal communication is limited. School feel she hits out in a way to control her environment. 

As her anxities increase, she will become quiet and seek space away from everyone. She will refuse all choices made by staff along with requests to use a safe quiet space. The more staff talk to her, the heightened she becomes. If she continues to be in a heightened state, she can abscond from school. She will then approach strangers, injuring staff, and displays unsafe behaviour near a busy road. 

My daughter made a list of issues in school and I gave it to her teachers so they can help. One thing she put on there was when she's distressed, she struggles to speak and it's frustrating so if they use a whiteboard to communicate it will help. And she also put that she has no idea what to do with herself when struggling. I don't know how to help her cope because I've run out of ideas. She has a lanyard in school so she can show how she's feeling or what she needs but she won't use it. She has lots of methods to help tell staff her issues but she won't. 

Parents
  • My daughter is going through similar however she is only 4 years old. We think she may have PDA so trying to follow steps and advice on that to try and help. She has only started this week wearing ear defenders, and the nursery can’t believe how much they have benefitted her. I know you get “loop” ear plugs which don’t completely shut out all sounds but help reduce background noise and help with sensory issues. Not sure if something like this could help her regulate? I’m so new to all of this and still waiting/fighting for diagnosis for my daughter. 

  • She does have ear defenders, both at home and school. She doesn't tend to wear them much even when she's by herself. She tends to 'mask' everything and I don't think she feels comfortable wearing them around people she knows but going out in public herself, she used too. 

    We are working on it. 

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