When to tell 8 year old

Our son was diagnosed about the time he started school and over the time he has been in school he has become much better at dealing with his day-to-day (mainly sensory issues and control of emotions). He still has bad days and often spends all day at school and the childminder masking and then all the emotion floods out when he gets home in the evening. 

We did start to approach the subject of autism a couple of times. We once had a conversation with him where he did show an appreciation of the fact that noises affected him lots more than they did his peers but that was about as much as we discussed. Another time he overheard his Mum and I talking about his favourite strongman who is autistic and he asked what that meant.  

We don't want to bring autism up in a way that is going to end up defining him, but equally if he is noticing ways that he seems different from his peers (I am going through assessment at the moment and remember how I felt very different to other kids when I was young) I don't know if having that knowledge will make him understand why a little better. We also don't want to leave it too late that he might react badly that we never told him before.

Most of me thinks (hopes) that it will be obvious when the time is right, but there is a small part of me (the massive overthinker/worrier) that says I should be thinking about it is appropriate to do so. Does anyone have any advice or experience they can share about how and when we should be talking to him about his diagnosis?

Parents
  • Her primary school started the iep process but was deemed too high functioning to continue

    I am not a lawyer, this is nor legal advice, but that may be illegal. When determining whether some one counts as disabled the messure is their ability compared to what it would be if they didn't have the impairment. Please see this account of Elliot v Dorset County Council for more detail.

  • Thank you Peter. I will definitely have a look at that. It was very strange and since my daughter was diagnosed, getting any support for her has felt like a battle. She was under a speech therapist and educational psychologist at the time and was really struggling at school so the school were happy to start the process so there would be extra provision for her and even the possibility of her needing to go to a specialist school. But the senco pulled me aside and said because she was classed as high functioning because and I quote "she could read, write and her comprehension was good" the council would just reject her application so there was no point in going further with it. I knew absolutely nothing about the process or even autism back then so I stupidly took the word of this 'professional' and stopped the application. As I said my daughter is now almost 16,in her last year of school and hasn't had in school support since starting secondary school because she doesn't have an iep.

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  • Thank you Peter. I will definitely have a look at that. It was very strange and since my daughter was diagnosed, getting any support for her has felt like a battle. She was under a speech therapist and educational psychologist at the time and was really struggling at school so the school were happy to start the process so there would be extra provision for her and even the possibility of her needing to go to a specialist school. But the senco pulled me aside and said because she was classed as high functioning because and I quote "she could read, write and her comprehension was good" the council would just reject her application so there was no point in going further with it. I knew absolutely nothing about the process or even autism back then so I stupidly took the word of this 'professional' and stopped the application. As I said my daughter is now almost 16,in her last year of school and hasn't had in school support since starting secondary school because she doesn't have an iep.

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